I’ve not got a similar experience in the slightest.
However, since I had a bad drug reaction to Avonex initially, and Copaxone had stopped working after 5 years, I wasn’t on a disease modifying drug when I had the nastiest relapse of my MS life. My legs stopped working within 3 days, I could feel nothing below the waist, ended up in hospital, then rehab unit altogether for 8 weeks. The IV steroids worked to a degree, but I never walked again without FES (or an orthotic) and a walker. That was nearly 7 years ago.
Previous to that, I always used to tell people that I’d been relatively lucky. I had MS, but wasn’t disabled by it. I don’t tell them that anymore. But then I don’t need to, I am a wheelchair user so it’s obvious.
I was diagnosed in the days of there just being an option of beta-interferon or Copaxone. Since the big relapse, I tried Tysabri and Tecfidera and had side effects from both that made them impossible for me. But I still believe in DMDs.
I understand why you might not want to take a drug that might give you side effects. But for me, the risk is worth the benefits. And you can always stop a drug if you find the side effects make the risk not worth the benefits. And Tecfidera is a good drug, apparently it works best when it’s your first DMD. If you think about the relapse reduction rate being about 50%, for some people that will be 20%, and others 80%. And it’s not just the number of relapses, it’s the severity too.
Hopefully some others will reply to you who are in a similar position; this is just my experience, and my belief about the drugs. Ultimately, it’s your decision. And I’m sure that you may not get to see your MS nurse quite as often if you don’t take DMDs, but they will still be there and available to help if/when you have a relapse.
Best of luck.