Hello playmates! Following my respite stay last week, and the letter sent to my neuro by the Medical Director there on my behalf, I have received an appointment.
I last saw a neuro at the local hospital last feb. You may recall that guy was gonna sort out a definite dx for me, after being mucked about big time!
So when is this new appointment? Well, its in July 2012!!!!1 And the time is 4.45pm! Guess the letter put someones back up, eh?
But am I bovvered? Nah, not anymore…i know I have PPMS and that there is no cure nor treatment to slow down the progression.
It is what it is and I am what I am! No point fretting over it, I reckon. I`ll just get on with living the best way I can.
Hi Polly, you can’t do any more, there is no point in worry about it and wasting you’re life, I’ve meet you and you know I don’t mean this bad, but it is plan to see that you have PPMS, you tkae good care, Jean x
Good old NHS - quick on the mark as ever. OK, yes, I’m being a little unfair (I know they can be wonderful), but it never ceases to amaze me how long it takes to see a consultant on the NHS when I bet you could see the same person privately before Christmas
Poll, when you’ve had symptoms for years and have disability you seem to get pushed to the back of the line.
Like you I saw a team of Dr’s in April who said they would sort out a diagnosis for me or get me to one as near as possible. I’m going to have to chase things up.
You’re not bovvered as you know they can’t do anything to help you.
Poll, I’m giving your memory a nudge. I was the one who put you in touch with my friend who has HSP when they told you it was HSP.
Symptoms fourteen years, previous optic neuritis, then optic atrophy, spastic weakness in legs and right arm. Also have quite bad chewing and swallowing problems and a peg tube was suggested.