Aside from when things first started (understandably I didn’t know what to think was going on). I’ve been pretty held together majority of the time and trundled along.
I think the latest flare up which hasn’t completely recovered (started July - early days still I know) coupled with the fact I’m having new tests has brought everything to the forefront of my mind.
I write in my spare time and have completed a novel which I’m editing - it’s taken me 3 years to get here because of things that have happened along the way - my health being a major factor. When discussing the obstacles stopping us from our goals with a colleague I almost burst out crying (Silly I know).
I guess more than anything I’m more scared of them not finding anything new on the tests and still being here in limboland without help. The thought of MS doesn’t particularly scare me- not that I want to have it - but to be honest just knowing whats going on would be a relief.
Have my follow-up neuro review booked for feb. Still waiting to hear back as to when my MRI/LP/EVP is likely to be - hope it’s soon. I presume if anythings found the neuro would contact me and see me earlier before the feb appointment.