I have been told I have Demylination of the central nervous system. They think it’s MS but are waiting for more proof.

I am getting severe pain at the base of my skull on the right hand side. It comes in waves and feels like something boring into the back of my head. I just wanted to know if anyone else has experienced this or am I just putting everything down to Demylination.


i have headaches that i describe as an ice pick to my skull.

they come and go. i usually hold the bit that hurts and tell myself that this will make it go away. (gullible me?)

are you able to tell your neuro what is going on?

have you got an ms nurse?

hang in there mitch

carole x

Hi Carole,

I don’t have a MS nurse as they are still trying to diagnose.

im seeing my GP next week, so will talk to him. Not seeing neurologist again until October.

I have been having the pain in my head on and off for years, and was told by a doctor that my neck was causing the pain. But since finding out from my neurologist that the pains in my legs, which I’ve been having for a while is down to the demylination, I’m now wondering about the head pain.