I have SPMS and am almost completely wheelchair bound. I try desperately try to retain my weight bearing, by standing up using a bar fixed to the wall of my room. This I can manage for only 5 mins twice a day! It gives me the leg strength to manage transfers. I do see a physiotherapist.

Please tell me if/what ms folk do to avoid being totally legless if u know what I mean? Also does anyone use a leg separating pillow?


Hi, yeh it`s good that you are managing to get the strength exercises done. Sadly I lost my mobility and standing strength a while after. I am legless! I use a pillow under my calves in bed, as my heels hurt when on the bed. \Good luck. xx