# Abandoned by the system

**URL:** <https://forum.mssociety.org.uk/t/abandoned-by-the-system/73537>\
**Category:** Everyday living\
**Tags:** ms-support\
**Created:** [8 October 2023 08:56 UTC](https://forum.mssociety.org.uk/t/abandoned-by-the-system/73537 "2023-10-08T08:56:38Z")\
**Posts on this page:** 4\
**Page:** 1

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**Author:** ![Roses1](https://avatars.discourse-cdn.com/v4/letter/r/e274bd/32.png) [@Roses1](https://forum.mssociety.org.uk/u/Roses1)\
**Post date:** [8 October 2023 08:56 UTC](https://forum.mssociety.org.uk/t/abandoned-by-the-system/73537/1 "2023-10-08T08:56:38Z")

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I have had MS for many years and haven’t had the support I need. My MS nurse has known me for 20 years, and yet she has now idea how I am effected by this disease. She doesn’t listen to a word I say. There is no support and it’s tuff being on your owe. Where do you go with this if your not listening to?

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**Author:** ![MariaB123](https://avatars.discourse-cdn.com/v4/letter/m/47e85d/32.png) [@MariaB123](https://forum.mssociety.org.uk/u/MariaB123)\
**Post date:** [8 October 2023 16:32 UTC](https://forum.mssociety.org.uk/t/abandoned-by-the-system/73537/2 "2023-10-08T16:32:18Z")

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If I were you, I would talk to my GP. Is there a way for you to be seen in a different hospital or by a different MS nurse? Sending you positive energy.

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**Author:** ![Flowerpot](https://avatars.discourse-cdn.com/v4/letter/f/90ced4/32.png) [@Flowerpot](https://forum.mssociety.org.uk/u/Flowerpot)\
**Post date:** [8 October 2023 17:47 UTC](https://forum.mssociety.org.uk/t/abandoned-by-the-system/73537/3 "2023-10-08T17:47:09Z")

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I share your feelings, I don’t have an ms nurse and my neurologist is abrupt and disinterested.  
Ask your GP if there is an ms specialist either in your own health authority area or a neighbouring one and ask for a referral to him/her.  
I did this several years ago, he talked to me, listened to me and answered my questions but then I went back to neurologist number 1 because of the travelling.

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**Author:** ![Hank\_Dogs](https://avatars.discourse-cdn.com/v4/letter/h/e95f7d/32.png) [@Hank\_Dogs](https://forum.mssociety.org.uk/u/Hank_Dogs)\
**Post date:** [8 October 2023 22:28 UTC](https://forum.mssociety.org.uk/t/abandoned-by-the-system/73537/4 "2023-10-08T22:28:50Z")

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Hi Roses. As Maria says, start off by talking with your GP. Apologies for asking but are there particular issues that you are worried about and which the MS Nurse seems disinterested in?