Hi everyone hope your all as well as you can be. Do you ever get sick of people saying “oh but you look so well” if only they knew how we really felt, I think the only people that do know how we feel are the ones that suffer with it US!! So I thought I’d start this off. To make someone understand how it feels for me on a daily basis I’d cover their legs in elastic bands as tight as I could get them, put lots of wadding in their underwear and fill their trousers with concrete and everytime they bent over I’d poke a broom handle up their backside. I’d do the same with their wrists minus the broom handle of course, then I’d give them a rubber knife and fork to eat their meals with and every so often I’d give them an electric shock in the hands. On a morning I’d drug them with sleeping tablets yet push them to carry on as normal, afterall someone has to do the daily chores!! When they went to bed at night I’d insert prickly bushes and hot water bottle with no cover on into their pj’s and a constantly active tuning fork against the soles of their feet. What would you do to try & make someone understand what ms is all about, I know the above might not be a very good anology but its the only way I can describe how it is for me. There are other things but trying to describe them is a little difficult. Sue x
Hi, I`d just tie them up in a srong bag and tie it well. It would be a bag they cant escape from.
Thats how I feel.........as if I am bound, but not gagged...as you know, im very vocal!
luv Pollx
Hi sue,
Described so well, I would also get them really badly sunburned on their legs/feet and face not have anything to put on to ease the pain, or stand them in a freezer and not let them out, I would get them so drunk that walking was a real problem and their head felt like it wasn’t their own, put their hands into a vice and turn, give them sleeping tablets and say carry on doing what you should in a day, OMG I could go on and on.
By the way anyone reading my reply Bambi/Sue is the lovely lady I’ve meet through this forum, we meet for coffee and catch up and have built up a good friendship, so thank you.
Love Jean x x
hi sue
to be honest i wouldnt wish this on my worst enemy-even the guy that abused me…
however, trying to answer the question u asked…i think its an impossible one cos no 2 of us are/coping the same but constant wet pads and possibilty of sh*tting at any time, blind in one eye, the constant nausea, give urself a ‘dead’ arm and leg on one side, out of focus glasses when trying to watch tv, forgetting u cant write when need a shopping list or note phone number…speak in a foreign language and expect others to understand you…
gosh-when i list it its horrendous! i suppose it is BUT i need/want to find one thing to smile about every day-so far in 9 years i have achieved that.
great question but i would suggest that u will never get others to know how u feel, even us on here cos we are not you! i would like to think we are more symathetic than joe bloggs but ur description of things is clear to me!
take care, ellie
I’d get them to wear one of those fat suits to restrict mobility and add weight, strap weights to their wrists and ankles, then get them to drink a pint of water…then wait. Oh, and the toilet’s upstairs and there’s no stair lift or thru-floor lift. And maybe they should wear thick mittens, too.
[quote=“chocorange”]
hi sue
to be honest i wouldnt wish this on my worst enemy-even the guy that abused me…
however, trying to answer the question u asked…i think its an impossible one cos no 2 of us are/coping the same but constant wet pads and possibilty of sh*tting at any time, blind in one eye, the constant nausea, give urself a ‘dead’ arm and leg on one side, out of focus glasses when trying to watch tv, forgetting u cant write when need a shopping list or note phone number…speak in a foreign language and expect others to understand you…
gosh-when i list it its horrendous! i suppose it is BUT i need/want to find one thing to smile about every day-so far in 9 years i have achieved that.
great question but i would suggest that u will never get others to know how u feel, even us on here cos we are not you! i would like to think we are more symathetic than joe bloggs but ur description of things is clear to me!
take care, ellie
[/quote] Hi Ellie I realise that no two of us are the same I was just trying to explain what I’d do to people in my life that dont understand what it feels like!! And whilst I’m not a bitter or twisted person and wouldn’t wish it on any of my loved ones or anyone else for that matter I’d happily give it to the guy that abused me, only because I’d like to see him suffer the way I did as a child as it still affects me even now I think the replies are very interesting & can really relate to them Sue xx
Put on thick gloves and try to do up buttons, hooks and eyes and use a knife and fork.
I would describe it as… Having the flu 24/7. Suffering lactose acid type pain in all joints every day and hurting like hell every time you move, 24/7. Having one side of your body that is double the weight of the other and the effort to move - even turning over in bed - is like hauling a ten ton truck with a herd of elephants on the Having no option of respite from any of the above any time soon! Etc, etc, etc …
I would describe it as… Having the flu 24/7. Suffering lactose acid type pain in all joints every day and hurting like hell every time you move, 24/7. Having one side of your body that is double the weight of the other and the effort to move - even turning over in bed - is like hauling a ten ton truck with a herd of elephants on the back. Having no option of respite from any of the above any time soon! Etc, etc, etc …
Electric shocks through hands, feet,legs and face, vasaline in eyes, lead weights around their legs and arms, cotton wool in mouth and ears, oh and hot needles randomly any where in the body at anytime for no reason, and riding on a roller coaster permanently.
If a lot of those rubbish neuros out there had to walk in our shoes bet they;d get their bacsides into geae and do more to find a dx,
Ice cubes between layers of clothes
Make them drink extra and put obstacles between then and bathroom
Splint on one leg so knee can’t be bent and weight down that shoe to really hammer it home how difficult it is to walk
I’m with Bunnythecat, rollercoaster for a whole 1 hour commute or the like. I’m either playing on my phone or asleep in the car, it terrifies me (and I used to love rollercoasters)!
I’m sure I’ll think of more
Sonia x
Loving some of these ideas. I would add sharp stones in their shoes, thick gloves filled with nettles, blood pressure cuff on random limbs at random times and for random lengths of time. Tracey x
Hi !
I’d hook them up to a mild electric current that intermittently fired up making the left side of their bodies contort into strange shapes!
Tracyann xx
Ohh you are a cruel lot. HeHe HaHaHaHaHaHaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa
Patrick
[quote=“artful”]
Ohh you are a cruel lot. HeHe HaHaHaHaHaHaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaa
Patrick
[/quote] It’s only for a day Patrick 
Put a whole house brick up " where the sun don’t shine " And they tell them " it’ll pass, let nature take it’s course "
How do we get them to keep biting the inside of their cheek and tongue and dribble when they lean forward?
How do we get them to keep biting the inside of their cheek and tongue and dribble when they lean forward?