It’s the “steady decline” without relapses over the last 18 months that has convinced my consultant that I’m now SPMS.
Thinking back over the 5 or so years I dont think I’ve really had a "stand out " relapse.
As both my sister and cousin have RRMS I can sort pf gauge my MS on how theirs have acted over the years, and mine is a gradual a decline as opposed to theirs being obvious relapses and then remitting.
In the early days I did consider a 2nd opinion but now looking back I think my consultant has been spot with his diagnosis.
Having said that, I have on occasion been had letters from the clinic that say I’m (even recently) SPMS WITH RELAPSES !
I have very recently had he opportunity to go onto the Phase 3 trial - MS-STAT2 , which I have done.
Apparently the previous studies are showing that theres a chance that this drug slows down the progression of SPMS ?
Phase 3 is the final trial so fingers crossed it will have a positive outcome !
And it costs absolute pennies to manufacture, so if the final data results are positive theres a very good chance that NICE will approve it ?