# Latest **URL:** https://forum.mssociety.org.uk/latest.md [Latest](https://forum.mssociety.org.uk/latest.md) · [Categories](https://forum.mssociety.org.uk/categories.md) · [Tags](https://forum.mssociety.org.uk/tags.md) --- ## [Scans and DMT](https://forum.mssociety.org.uk/t/scans-and-dmt/81912)
**Author:** [@claret57](https://forum.mssociety.org.uk/u/claret57)\ **Replies:** 1\ **Last updated:** [15 October 2026 18:33 UTC](https://forum.mssociety.org.uk/t/scans-and-dmt/81912 "2026-10-15T18:33:49Z")
Continuing the discussion from MS Related ?: Well the hives are still here but this now seems so trivial although still annoying. Unfortunately I’ve not had great news today from my neurologist , a new spinal lesion ha… --- ## [Intermittent eye issues](https://forum.mssociety.org.uk/t/intermittent-eye-issues/81921)
**Author:** [@Becki](https://forum.mssociety.org.uk/u/Becki)\ **Replies:** 1\ **Last updated:** [15 October 2026 18:12 UTC](https://forum.mssociety.org.uk/t/intermittent-eye-issues/81921 "2026-10-15T18:12:43Z")
Hi all, I was diagnosed with RRMS last October, my first symptom was optic neuritis. Initially I lost all sight in my left eye, I can now see a little from this eye but it is limited and the consultant has advised it won… --- ## [Recently diagnosed with MS at 25- struggling to control balance ](https://forum.mssociety.org.uk/t/recently-diagnosed-with-ms-at-25-struggling-to-control-balance/81925)
**Author:** [@liliellamasonhand](https://forum.mssociety.org.uk/u/liliellamasonhand)\ **Replies:** 1\ **Last updated:** [15 October 2026 16:29 UTC](https://forum.mssociety.org.uk/t/recently-diagnosed-with-ms-at-25-struggling-to-control-balance/81925 "2026-10-15T16:29:56Z")
Hi all, been advised by Drs to join this site. I really struggle with my balance and can’t stand still or walk anywhere without feeling like i can’t stand up straight or going to loose balance. Does anyone have any advic… --- ## [Getting a repeat prescription checked when you move between countries](https://forum.mssociety.org.uk/t/getting-a-repeat-prescription-checked-when-you-move-between-countries/81924)
**Author:** [@tressa\_dictazat](https://forum.mssociety.org.uk/u/tressa_dictazat)\ **Replies:** 0\ **Last updated:** [15 October 2026 16:08 UTC](https://forum.mssociety.org.uk/t/getting-a-repeat-prescription-checked-when-you-move-between-countries/81924 "2026-10-15T16:08:35Z")
When I moved, the repeat prescription was the part nobody could advise on: the old doctor could not issue it any more and the new one wanted to see the notes before continuing anything. Curious how others handled the gap… --- ## [Where do the published waiting-time figures actually come from?](https://forum.mssociety.org.uk/t/where-do-the-published-waiting-time-figures-actually-come-from/81923)
**Author:** [@tressa\_dictazat](https://forum.mssociety.org.uk/u/tressa_dictazat)\ **Replies:** 0\ **Last updated:** [15 October 2026 16:08 UTC](https://forum.mssociety.org.uk/t/where-do-the-published-waiting-time-figures-actually-come-from/81923 "2026-10-15T16:08:21Z")
Something I keep running into when comparing systems: the waiting-time numbers get quoted everywhere but the definitions behind them differ. Does anyone know what a target actually counts - time to first appointment, tim… --- ## [PPMS numbers by county/region?](https://forum.mssociety.org.uk/t/ppms-numbers-by-county-region/81811)
**Author:** [@Clucker\_Pigeon2024](https://forum.mssociety.org.uk/u/Clucker_Pigeon2024)\ **Replies:** 9\ **Last updated:** [15 October 2026 16:08 UTC](https://forum.mssociety.org.uk/t/ppms-numbers-by-county-region/81811 "2026-10-15T16:08:03Z")
Hi there. I’d like to start a peer support group for ppms only within the county I live in. I find that sharing locality issues (services, environment etc.) really helps build connections, far more intimate and inclusiv… --- ## [How to manage on your own](https://forum.mssociety.org.uk/t/how-to-manage-on-your-own/81914)
**Author:** [@peachymama](https://forum.mssociety.org.uk/u/peachymama)\ **Replies:** 2\ **Last updated:** [15 October 2026 16:07 UTC](https://forum.mssociety.org.uk/t/how-to-manage-on-your-own/81914 "2026-10-15T16:07:54Z")
Just decided to post to see if anyone was in a similar situation or had any good advice. I’m 47, I live on my own, have no partner or children, no real supportive friends or work colleagues, and unfortunately I never sh… --- ## [My advice on Hair Loss](https://forum.mssociety.org.uk/t/my-advice-on-hair-loss/12451)
**Author:** [@Aromastoff](https://forum.mssociety.org.uk/u/Aromastoff)\ **Replies:** 9\ **Last updated:** [15 October 2026 16:07 UTC](https://forum.mssociety.org.uk/t/my-advice-on-hair-loss/12451 "2026-10-15T16:07:24Z")
Hey All! After having receiving so much help from all of you, I thought it was time to share something I tried that may be of interest for you! :slight\_smile: Like many of you, I have lost quite a lot of hair. I am a 4… --- ## [eating well.](https://forum.mssociety.org.uk/t/eating-well/81920)
**Author:** [@jthatcher](https://forum.mssociety.org.uk/u/jthatcher)\ **Replies:** 0\ **Last updated:** [15 October 2026 11:48 UTC](https://forum.mssociety.org.uk/t/eating-well/81920 "2026-10-15T11:48:25Z")
we’re often told that eating well is important well, today I have the first lamb stew of the year in the slow cooker. it’s been there for nearly 5 hours already while I get stuff done around here and, smells lovely, I’ll… --- ## [Are spinal lesions recognized as sign of MS?](https://forum.mssociety.org.uk/t/are-spinal-lesions-recognized-as-sign-of-ms/81858)
**Author:** [@lycettmaggie](https://forum.mssociety.org.uk/u/lycettmaggie)\ **Replies:** 10\ **Last updated:** [15 October 2026 09:30 UTC](https://forum.mssociety.org.uk/t/are-spinal-lesions-recognized-as-sign-of-ms/81858 "2026-10-15T09:30:10Z")
My lesions are in my spine not visible in my head so some neurologists I have visited tell me I don’t have MS. Has anyone else experienced this? --- ## [Hello - it's great to meet you all! ](https://forum.mssociety.org.uk/t/hello-its-great-to-meet-you-all/81909)
**Author:** [@FlorenceMSS](https://forum.mssociety.org.uk/u/FlorenceMSS)\ **Replies:** 5\ **Last updated:** [14 October 2026 21:34 UTC](https://forum.mssociety.org.uk/t/hello-its-great-to-meet-you-all/81909 "2026-10-14T21:34:16Z")
Hello everyone - my name is Florence and I am the Virtual Communities Manager, in the National Services team here at the MS Society. I have recently joined the organisation, having been here just over a month now! My ro… --- ## [everyday life with MS easier often comes down to pacing](https://forum.mssociety.org.uk/t/everyday-life-with-ms-easier-often-comes-down-to-pacing/81588)
**Author:** [@rowanhueo](https://forum.mssociety.org.uk/u/rowanhueo)\ **Replies:** 3\ **Last updated:** [14 October 2026 20:48 UTC](https://forum.mssociety.org.uk/t/everyday-life-with-ms-easier-often-comes-down-to-pacing/81588 "2026-10-14T20:48:09Z")
Manage fatigue: Break large tasks into smaller steps and take regular rest breaks. Try to do important activities when your energy is usually highest. Stay cool: Heat can temporarily worsen MS symptoms for some people. … --- ## [Catheter legbag odour](https://forum.mssociety.org.uk/t/catheter-legbag-odour/80297)
**Author:** [@Hils](https://forum.mssociety.org.uk/u/Hils)\ **Replies:** 2\ **Last updated:** [14 October 2026 17:14 UTC](https://forum.mssociety.org.uk/t/catheter-legbag-odour/80297 "2026-10-14T17:14:14Z")
Hi, this is a strange one…. I recently had a catheter fitted and have noticed that the legbags take on a distinct and unpleasant odour (I can only describe it as the smell of a bonfire). They are changed regularly, I do … --- ## [PIP and the appeal process - is it worth it?](https://forum.mssociety.org.uk/t/pip-and-the-appeal-process-is-it-worth-it/81156)
**Author:** [@jamesdjgale](https://forum.mssociety.org.uk/u/jamesdjgale)\ **Replies:** 39\ **Last updated:** [14 October 2026 16:19 UTC](https://forum.mssociety.org.uk/t/pip-and-the-appeal-process-is-it-worth-it/81156 "2026-10-14T16:19:05Z")
hey all, after a lengthy application process, my pip application was rejected. I have RRMS and am in some ways in good health/fitness - but I am also subject to a number of difficult, debilitating symptoms, not least fa… --- ## [Husband has SPMS](https://forum.mssociety.org.uk/t/husband-has-spms/81913)
**Author:** [@TessUK](https://forum.mssociety.org.uk/u/TessUK)\ **Replies:** 1\ **Last updated:** [14 October 2026 16:04 UTC](https://forum.mssociety.org.uk/t/husband-has-spms/81913 "2026-10-14T16:04:42Z")
Hello all, my husband has had SPMS for almost 20 years and together with ‘healthy’ living and a lot of good fortune he’s been doing fairly well. Lately however I’ve noticed his walking has got a lot worse in the evenings… --- ## [All Possible Options](https://forum.mssociety.org.uk/t/all-possible-options/81916)
**Author:** [@garsh5711](https://forum.mssociety.org.uk/u/garsh5711)\ **Replies:** 0\ **Last updated:** [14 October 2026 15:38 UTC](https://forum.mssociety.org.uk/t/all-possible-options/81916 "2026-10-14T15:38:19Z")
Greetings from Florida, USA. My wife was diagnosed earlier this year with MS, we’re still not entirely sure what type because the first rounds of meds (Kesimpta) made her substantially worse and we ended up in the hospi… --- ## [Walking struggles ](https://forum.mssociety.org.uk/t/walking-struggles/81228)
**Author:** [@jmr](https://forum.mssociety.org.uk/u/jmr)\ **Replies:** 5\ **Last updated:** [13 October 2026 19:12 UTC](https://forum.mssociety.org.uk/t/walking-struggles/81228 "2026-10-13T19:12:51Z")
I am struggling with foot drop after walking for approx 10 mins I have to stop and can’t continue. It’s been like this since August. I’m struggling so much. I’m 41 with 3 children under 5. I can’t give them the life I wa… --- ## [Depression or just fatigued?](https://forum.mssociety.org.uk/t/depression-or-just-fatigued/38503)
**Author:** [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Replies:** 6\ **Last updated:** [13 October 2026 15:55 UTC](https://forum.mssociety.org.uk/t/depression-or-just-fatigued/38503 "2026-10-13T15:55:42Z")
--- ## [New Diagnosis of RRM](https://forum.mssociety.org.uk/t/new-diagnosis-of-rrm/81901)
**Author:** [@catiammldias](https://forum.mssociety.org.uk/u/catiammldias)\ **Replies:** 4\ **Last updated:** [13 October 2026 15:53 UTC](https://forum.mssociety.org.uk/t/new-diagnosis-of-rrm/81901 "2026-10-13T15:53:24Z")
Hi everyone, I am Catia with 44 years old, recently diagnosed with RRMS. I am scared and trying to get more information about it, I can’t even describe what me and my family are been through at these point, because it’s … --- ## [Mums MS ](https://forum.mssociety.org.uk/t/mums-ms/81908)
**Author:** [@emma2](https://forum.mssociety.org.uk/u/emma2)\ **Replies:** 3\ **Last updated:** [13 October 2026 15:49 UTC](https://forum.mssociety.org.uk/t/mums-ms/81908 "2026-10-13T15:49:01Z")
Hello, my mum was diagnosed back in 2018 she is 68 only a very mild form but I have noticed recently her memory is getting really bad. The doctors have advised some crosswords & word searches etc. She has been out of wor… --- ## [A hip replacement](https://forum.mssociety.org.uk/t/a-hip-replacement/79590)
**Author:** [@lilacttree](https://forum.mssociety.org.uk/u/lilacttree)\ **Replies:** 1\ **Last updated:** [13 October 2026 12:15 UTC](https://forum.mssociety.org.uk/t/a-hip-replacement/79590 "2026-10-13T12:15:34Z")
Hi I’m Tina new to the forum I have a date for a hip replacement I’m withering whether to go ahead as the medical staff can’t help with my decision Has anyone had a hip replacement and has drop foot and difficulty walkin… --- ## [Could this Be Partial Transverse Myelitis](https://forum.mssociety.org.uk/t/could-this-be-partial-transverse-myelitis/81797)
**Author:** [@jgailbeek](https://forum.mssociety.org.uk/u/jgailbeek)\ **Replies:** 1\ **Last updated:** [13 October 2026 11:31 UTC](https://forum.mssociety.org.uk/t/could-this-be-partial-transverse-myelitis/81797 "2026-10-13T11:31:51Z")
Hi there! I’ve been on a rather scary and quite heavy health journey for the past year now. My symptoms stared with a random cold sensation on my right ankle. This led me to believe I may be dealing with circulation issu… --- ## [Very depressed - hubby getting worsr](https://forum.mssociety.org.uk/t/very-depressed-hubby-getting-worsr/81894)
**Author:** [@Carin](https://forum.mssociety.org.uk/u/Carin)\ **Replies:** 1\ **Last updated:** [13 October 2026 11:22 UTC](https://forum.mssociety.org.uk/t/very-depressed-hubby-getting-worsr/81894 "2026-10-13T11:22:14Z")
Hi everyone. Just wanted to let my feelings out because I have no one to talk to about this problem. My husband is 65 years old, has had MS for about 30 years +. Lately he has been hospitalised with severe UTI infections… --- ## [Nausia](https://forum.mssociety.org.uk/t/nausia/81869)
**Author:** [@Daza](https://forum.mssociety.org.uk/u/Daza)\ **Replies:** 4\ **Last updated:** [13 October 2026 06:21 UTC](https://forum.mssociety.org.uk/t/nausia/81869 "2026-10-13T06:21:45Z")
Hi everyone. Has had anyone had experience of using a motion sickness wristband. I seem to be getting nausea and anxious more when about to travel especially on flights and am looking to try something different. I have a… --- ## [Disabled person’s railcard](https://forum.mssociety.org.uk/t/disabled-person-s-railcard/80286)
**Author:** [@alison100](https://forum.mssociety.org.uk/u/alison100)\ **Replies:** 21\ **Last updated:** [12 October 2026 10:53 UTC](https://forum.mssociety.org.uk/t/disabled-person-s-railcard/80286 "2026-10-12T10:53:37Z")
Does anyone have recent experience of applying for one? I’ve heard mixed messages: some people say that an MS dx does the trick (I have had one of those for a long time), others that you have to be in receipt of certain … --- ## [Fall mornings hit different with MS — anyone else?](https://forum.mssociety.org.uk/t/fall-mornings-hit-different-with-ms-anyone-else/81902)
**Author:** [@khanseeds332](https://forum.mssociety.org.uk/u/khanseeds332)\ **Replies:** 0\ **Last updated:** [12 October 2026 08:01 UTC](https://forum.mssociety.org.uk/t/fall-mornings-hit-different-with-ms-anyone-else/81902 "2026-10-12T08:01:13Z")
Hey everyone, I’m new here. Living in the US (Midwest), and fall just rolled in — beautiful colors everywhere, but my body did NOT get the memo. The cooler mornings have my legs feeling like they’re moving through molass… --- ## [Slow release Melatonin. Any experience anyone?](https://forum.mssociety.org.uk/t/slow-release-melatonin-any-experience-anyone/81850)
**Author:** [@Kara](https://forum.mssociety.org.uk/u/Kara)\ **Replies:** 1\ **Last updated:** [11 October 2026 06:31 UTC](https://forum.mssociety.org.uk/t/slow-release-melatonin-any-experience-anyone/81850 "2026-10-11T06:31:00Z")
Hi…does anyone have experience of taking Melatonin please? I just started my 2mg slow release Melatonin prescription last night to help with insomnia, and although it helped me to sleep through the night, I feel so tire… --- ## [how to tell if it is an actual relapse](https://forum.mssociety.org.uk/t/how-to-tell-if-it-is-an-actual-relapse/81872)
**Author:** [@anonymous175](https://forum.mssociety.org.uk/u/anonymous175)\ **Replies:** 3\ **Last updated:** [10 October 2026 15:06 UTC](https://forum.mssociety.org.uk/t/how-to-tell-if-it-is-an-actual-relapse/81872 "2026-10-10T15:06:24Z")
hey guys. hope you’re all keeping well. how can you tell if something is an actual relapse or not? I have been out of sorts for the best part of a week now. my only relapse (two yrs ago) was quite severe, and quite clear… --- ## [Routine DMT blood test - unsure if flu jab timing could interfere with results!](https://forum.mssociety.org.uk/t/routine-dmt-blood-test-unsure-if-flu-jab-timing-could-interfere-with-results/81867)
**Author:** [@mackenzieblackman](https://forum.mssociety.org.uk/u/mackenzieblackman)\ **Replies:** 1\ **Last updated:** [10 October 2026 11:28 UTC](https://forum.mssociety.org.uk/t/routine-dmt-blood-test-unsure-if-flu-jab-timing-could-interfere-with-results/81867 "2026-10-10T11:28:45Z")
Hi there, Has anyone had any advice from MS nurses etc about if you need to watch out for anything when booking your routine yearly blood test (to check if your immune system is okay with DMT)? I want to make sure my C… --- ## [Feeling unsupported (JSA related)](https://forum.mssociety.org.uk/t/feeling-unsupported-jsa-related/81889)
**Author:** [@MariaB123](https://forum.mssociety.org.uk/u/MariaB123)\ **Replies:** 0\ **Last updated:** [10 October 2026 10:26 UTC](https://forum.mssociety.org.uk/t/feeling-unsupported-jsa-related/81889 "2026-10-10T10:26:09Z")
So, my contract ended in August and I have been looking for work since then. I applied for JSA as I can definitely work. My MS disability is invisible and even though I have told the coach about it, including telling her… [Next page](https://forum.mssociety.org.uk/latest.md?page=1)