# Symptoms and treatments **URL:** https://forum.mssociety.org.uk/c/symptoms-and-treatments/17.md?page=1 [Latest](https://forum.mssociety.org.uk/latest.md) · [Categories](https://forum.mssociety.org.uk/categories.md) · [Tags](https://forum.mssociety.org.uk/tags.md) **Page:** 2 --- ## [Alpha Lipoic Acid Trial](https://forum.mssociety.org.uk/t/alpha-lipoic-acid-trial/81772)
**Author:** [@Hank\_Dogs](https://forum.mssociety.org.uk/u/Hank_Dogs)\ **Replies:** 1\ **Last updated:** [17 September 2026 14:09 UTC](https://forum.mssociety.org.uk/t/alpha-lipoic-acid-trial/81772 "2026-09-17T14:09:37Z")
For those of you who haven’t seen it, some interesting news about Alpha Lipoic Acid as potential treatment for Progressive MS --- ## [Stress and lesions](https://forum.mssociety.org.uk/t/stress-and-lesions/81771)
**Author:** [@jmr](https://forum.mssociety.org.uk/u/jmr)\ **Replies:** 0\ **Last updated:** [16 September 2026 11:59 UTC](https://forum.mssociety.org.uk/t/stress-and-lesions/81771 "2026-09-16T11:59:05Z")
Does stress cause more ms lesions to appear? Or is it that it can cause symptoms from old lesions to appear? Or does it do both? --- ## [Medical Cannabis for PPMS](https://forum.mssociety.org.uk/t/medical-cannabis-for-ppms/80211)
**Author:** [@gerryvbc](https://forum.mssociety.org.uk/u/gerryvbc)\ **Replies:** 5\ **Last updated:** [16 September 2026 09:37 UTC](https://forum.mssociety.org.uk/t/medical-cannabis-for-ppms/80211 "2026-09-16T09:37:59Z")
Hello everyone, I have never used any form of ‘social media’ so please bear with me if I get things wrong on here. I am a 73 yr old guy with PPMS. My main issue (there are a few) is foot drop and loss of control in one l… --- ## [what exactly is myelin repair gonna do ?](https://forum.mssociety.org.uk/t/what-exactly-is-myelin-repair-gonna-do/79751)
**Author:** [@genik](https://forum.mssociety.org.uk/u/genik)\ **Replies:** 12\ **Last updated:** [14 September 2026 13:13 UTC](https://forum.mssociety.org.uk/t/what-exactly-is-myelin-repair-gonna-do/79751 "2026-09-14T13:13:06Z")
This statement was one that i was not expecting! Correct me if im wrong, but i was under the impression that myelin treatments that are expected to appear in the future are to repair myelin and disability, not just to sl… --- ## [Fampridine in the North East (Northumberland / Newcastle)?](https://forum.mssociety.org.uk/t/fampridine-in-the-north-east-northumberland-newcastle/81756)
**Author:** [@tom.morgan](https://forum.mssociety.org.uk/u/tom.morgan)\ **Replies:** 0\ **Last updated:** [14 September 2026 11:29 UTC](https://forum.mssociety.org.uk/t/fampridine-in-the-north-east-northumberland-newcastle/81756 "2026-09-14T11:29:56Z")
Is there anyone here who has managed to source Fampridine privately in the North East? Seem to be going round in circles trying to find someone able to assess and prescribe it, as it doesn’t seem like there are any MS-sp… --- ## [How often do you experience episodes or relapses?](https://forum.mssociety.org.uk/t/how-often-do-you-experience-episodes-or-relapses/81752)
**Author:** [@Cris](https://forum.mssociety.org.uk/u/Cris)\ **Replies:** 0\ **Last updated:** [14 September 2026 11:00 UTC](https://forum.mssociety.org.uk/t/how-often-do-you-experience-episodes-or-relapses/81752 "2026-09-14T11:00:37Z")
Hi everyone. How often do you experience episodes or relapses? I may be monitored with an MRI every 6 months without starting any specific treatment for now, and I’m not really sure what to expect. I had been completel… --- ## [Currently suffering vertigo like symptoms](https://forum.mssociety.org.uk/t/currently-suffering-vertigo-like-symptoms/81731)
**Author:** [@Ginger\_Matt](https://forum.mssociety.org.uk/u/Ginger_Matt)\ **Replies:** 2\ **Last updated:** [11 September 2026 11:16 UTC](https://forum.mssociety.org.uk/t/currently-suffering-vertigo-like-symptoms/81731 "2026-09-11T11:16:39Z")
Hope everyone is keeping well, I have been on tecfidera the last 8 weeks as my 1st treatment, was diagnosed in may, I don’t feel any different and I would suffer vertigo like symptoms every day, I have reached out to my … --- ## [16 new Ms lesions](https://forum.mssociety.org.uk/t/16-new-ms-lesions/81488)
**Author:** [@jmr](https://forum.mssociety.org.uk/u/jmr)\ **Replies:** 6\ **Last updated:** [2 September 2026 12:40 UTC](https://forum.mssociety.org.uk/t/16-new-ms-lesions/81488 "2026-09-02T12:40:18Z")
I’ve developed 16 lesions (15 brain, 1 spine) in last 10 months despite tysabri. Diagnosed 10 months ago. This seems a huge amount. Is it? How many lesions if you get progression have people shown? I need to decide whe… --- ## [Head Injury and MS](https://forum.mssociety.org.uk/t/head-injury-and-ms/81649)
**Author:** [@TheresaB](https://forum.mssociety.org.uk/u/TheresaB)\ **Replies:** 3\ **Last updated:** [28 August 2026 09:51 UTC](https://forum.mssociety.org.uk/t/head-injury-and-ms/81649 "2026-08-28T09:51:25Z")
An interesting article (2024 admittedly) caught my attention; A history of head injury along with HLA genes makes people upto 30% more likely to develop MS in later life. Given my Chunk (Goonies reference) like listing … --- ## [Can’t have any DMTs anymore](https://forum.mssociety.org.uk/t/can-t-have-any-dmts-anymore/81645)
**Author:** [@bellaparkhouse](https://forum.mssociety.org.uk/u/bellaparkhouse)\ **Replies:** 3\ **Last updated:** [25 August 2026 16:41 UTC](https://forum.mssociety.org.uk/t/can-t-have-any-dmts-anymore/81645 "2026-08-25T16:41:50Z")
I was wondering how people cope without DMTs? I was diagnosed at 15 & put on gilenya due to MS being active. At 18, I was allowed to go onto ocrevus as MS was still fairly active. I had ocrevus from 2020-2026 (took a br… --- ## [new inflammation; struggling to make sense of it](https://forum.mssociety.org.uk/t/new-inflammation-struggling-to-make-sense-of-it/81592)
**Author:** [@jamesdjgale](https://forum.mssociety.org.uk/u/jamesdjgale)\ **Replies:** 5\ **Last updated:** [22 August 2026 13:15 UTC](https://forum.mssociety.org.uk/t/new-inflammation-struggling-to-make-sense-of-it/81592 "2026-08-22T13:15:04Z")
hey guys, I hope you’re good. in april, my neurologist decided we would not start treatment for RRMS as he felt my lesions were relatively minor and there was good scope for recovery. he gave me a good prognosis, so to … --- ## [PPMS Diagnosis Journey: Which Symptoms Appeared First?](https://forum.mssociety.org.uk/t/ppms-diagnosis-journey-which-symptoms-appeared-first/81626)
**Author:** [@polpiop](https://forum.mssociety.org.uk/u/polpiop)\ **Replies:** 3\ **Last updated:** [20 August 2026 15:16 UTC](https://forum.mssociety.org.uk/t/ppms-diagnosis-journey-which-symptoms-appeared-first/81626 "2026-08-20T15:16:59Z")
I’ve been reading about Primary Progressive Multiple Sclerosis (PPMS) lately, and I that many people say their first symptoms were easy to ignore. Instead of sudden flare-ups, the changes often seemed to happen slowly o… --- ## [Cladrabine (Mavenclad) starting](https://forum.mssociety.org.uk/t/cladrabine-mavenclad-starting/81610)
**Author:** [@Ditchy](https://forum.mssociety.org.uk/u/Ditchy)\ **Replies:** 4\ **Last updated:** [16 August 2026 22:30 UTC](https://forum.mssociety.org.uk/t/cladrabine-mavenclad-starting/81610 "2026-08-16T22:30:15Z")
Hi All, I have now had my Cladrabine delivered and start taking it tomorrow. I was due to travel by train for 1hr on Wednesday (day 3) and return later that day but am confused as to if this is now a good idea. Can anyo… --- ## [Radiologist reports: How good are yours?](https://forum.mssociety.org.uk/t/radiologist-reports-how-good-are-yours/81603)
**Author:** [@Leonora](https://forum.mssociety.org.uk/u/Leonora)\ **Replies:** 7\ **Last updated:** [14 August 2026 12:03 UTC](https://forum.mssociety.org.uk/t/radiologist-reports-how-good-are-yours/81603 "2026-08-14T12:03:52Z")
As patients we are copied into radiology reports, but they are addressed to doctors and in doctor-speak. So it’s not easy to interpret them, of course. But… I’ve been quite alarmed by the quality of some radiology repor… --- ## [Ocrevus side effects - sensation of bruising](https://forum.mssociety.org.uk/t/ocrevus-side-effects-sensation-of-bruising/81581)
**Author:** [@sjs1971](https://forum.mssociety.org.uk/u/sjs1971)\ **Replies:** 2\ **Last updated:** [12 August 2026 20:44 UTC](https://forum.mssociety.org.uk/t/ocrevus-side-effects-sensation-of-bruising/81581 "2026-08-12T20:44:03Z")
I had my first sub cut Ocrevus injection on Thursday (switching from ofatumumab); had a strong steroid flush that has now subsided, but since yesterday I feel like I’m bruised all over. Every bit of me hurts to touch. No… --- ## [Is this optic neuritis???](https://forum.mssociety.org.uk/t/is-this-optic-neuritis/81584)
**Author:** [@Sandgrowner1](https://forum.mssociety.org.uk/u/Sandgrowner1)\ **Replies:** 5\ **Last updated:** [9 August 2026 16:50 UTC](https://forum.mssociety.org.uk/t/is-this-optic-neuritis/81584 "2026-08-09T16:50:00Z")
Hello I was diagnosed about 4 years ago, I have a symptom where every few weeks or days or even every day I have extreme pain when moving my eyes it alternates between eyes, it feels like someone is sticking a needle thr… --- ## [Fecal Incontinence](https://forum.mssociety.org.uk/t/fecal-incontinence/81535)
**Author:** [@basilfearrington](https://forum.mssociety.org.uk/u/basilfearrington)\ **Replies:** 3\ **Last updated:** [9 August 2026 08:58 UTC](https://forum.mssociety.org.uk/t/fecal-incontinence/81535 "2026-08-09T08:58:26Z")
If you’ve had fecal incontinence and have it managed or isn’t there any more, what did you do? --- ## [Vaccines](https://forum.mssociety.org.uk/t/vaccines/81569)
**Author:** [@jthatcher](https://forum.mssociety.org.uk/u/jthatcher)\ **Replies:** 13\ **Last updated:** [9 August 2026 04:53 UTC](https://forum.mssociety.org.uk/t/vaccines/81569 "2026-08-09T04:53:55Z")
I’m not really looking forward to this bit. I’m now booked in with my GP to go and have a whole bunch of vaccines in 3 weeks in preparation for the disease modifying therapy. They’ll put a time gap between the shingles … --- ## [Neuropathic Pain Struggles](https://forum.mssociety.org.uk/t/neuropathic-pain-struggles/80845)
**Author:** [@stacypope4](https://forum.mssociety.org.uk/u/stacypope4)\ **Replies:** 12\ **Last updated:** [8 August 2026 21:01 UTC](https://forum.mssociety.org.uk/t/neuropathic-pain-struggles/80845 "2026-08-08T21:01:27Z")
I’m really struggling with neuropathic pain across the left side of my chest and around into my back, I can’t wear a bra as it’s too painful and my sleeping is awful, I’m having to sleep the best I can sitting up. I’m o… --- ## [Mavenclad prescribed, now relapse](https://forum.mssociety.org.uk/t/mavenclad-prescribed-now-relapse/81088)
**Author:** [@Camaban](https://forum.mssociety.org.uk/u/Camaban)\ **Replies:** 6\ **Last updated:** [8 August 2026 14:42 UTC](https://forum.mssociety.org.uk/t/mavenclad-prescribed-now-relapse/81088 "2026-08-08T14:42:33Z")
I just wanted to warn people of potential side effects of Mavenclad. I started the ‘treatment’ at the beginning of the year, during the first week’s course, I began to become extremely dizzy- essentially worsening the e… --- ## [Ocrevus infusion – time off work](https://forum.mssociety.org.uk/t/ocrevus-infusion-time-off-work/81583)
**Author:** [@MariaB123](https://forum.mssociety.org.uk/u/MariaB123)\ **Replies:** 5\ **Last updated:** [8 August 2026 14:41 UTC](https://forum.mssociety.org.uk/t/ocrevus-infusion-time-off-work/81583 "2026-08-08T14:41:50Z")
Hi, I will be having my very first Ocrevus infusion soon, followed by the second infusion two weeks after the first one. I am trying to decide how many days of leave to request from work (I haven’t disclosed the MS). W… --- ## [Dry mouth symptom](https://forum.mssociety.org.uk/t/dry-mouth-symptom/77325)
**Author:** [@janetoliveives](https://forum.mssociety.org.uk/u/janetoliveives)\ **Replies:** 4\ **Last updated:** [7 August 2026 18:28 UTC](https://forum.mssociety.org.uk/t/dry-mouth-symptom/77325 "2026-08-07T18:28:26Z")
I suffer with a dry mouth which gets worse in the evenings - I am chomping my mouth and smacking my lips - and long for the relief of going to sleep. I sip water and moisturise my lips regularly but symptoms persist. It … --- ## [diagnosis and offered treatment - age 70](https://forum.mssociety.org.uk/t/diagnosis-and-offered-treatment-age-70/81327)
**Author:** [@almcsingh](https://forum.mssociety.org.uk/u/almcsingh)\ **Replies:** 5\ **Last updated:** [4 August 2026 10:58 UTC](https://forum.mssociety.org.uk/t/diagnosis-and-offered-treatment-age-70/81327 "2026-08-04T10:58:02Z")
Hello. Diagnosed a couple of weeks ago, after symptoms lasting from December 2025, which improved with steroids. After lots of tests (MRIs, blood tests, lumbar puncture, PET scan, ) although blood tests, PET scan and l… --- ## [mouth problems](https://forum.mssociety.org.uk/t/mouth-problems/80518)
**Author:** [@jane.core](https://forum.mssociety.org.uk/u/jane.core)\ **Replies:** 3\ **Last updated:** [31 July 2026 18:42 UTC](https://forum.mssociety.org.uk/t/mouth-problems/80518 "2026-07-31T18:42:49Z")
Hello all. Dx 2004, probably now SPMS. I had an unpleasant hospital admission a few weeks ago which included a 5 day IV steroid regime. Really unwell but finally allowed to go home. As the drug info predicted the side ef… --- ## [Advice needed on getting hold of some steroids after relapse](https://forum.mssociety.org.uk/t/advice-needed-on-getting-hold-of-some-steroids-after-relapse/80512)
**Author:** [@Camaban](https://forum.mssociety.org.uk/u/Camaban)\ **Replies:** 7\ **Last updated:** [31 July 2026 18:05 UTC](https://forum.mssociety.org.uk/t/advice-needed-on-getting-hold-of-some-steroids-after-relapse/80512 "2026-07-31T18:05:25Z")
Hello all, I am being basically refused steroids by my MS nurse, and my MS neurologist is just blanking my requests for this - helping to spiral me into a relapse that is worsening at a time where I have much that I nee… --- ## [Today’s the day!](https://forum.mssociety.org.uk/t/today-s-the-day/81544)
**Author:** [@Ginger\_Matt](https://forum.mssociety.org.uk/u/Ginger_Matt)\ **Replies:** 3\ **Last updated:** [30 July 2026 17:53 UTC](https://forum.mssociety.org.uk/t/today-s-the-day/81544 "2026-07-30T17:53:27Z")
Today has finally arrived! I have my appointment to start tecfidera today with my MS nurse! Been a long 2years to get to this stage :raising\_hands:t2::raising\_hands:t2: hardly slept a wink last night due to feeling nerv… --- ## [Ocrevus side effects.](https://forum.mssociety.org.uk/t/ocrevus-side-effects/81333)
**Author:** [@bramblek](https://forum.mssociety.org.uk/u/bramblek)\ **Replies:** 9\ **Last updated:** [30 July 2026 11:25 UTC](https://forum.mssociety.org.uk/t/ocrevus-side-effects/81333 "2026-07-30T11:25:54Z")
Hi everyone. Has anybody else suffered with constant sore throat and bad phlegm after ocrevus? Had my first two doses and have been okay, but noticed just lately having a sore throat which comes and goes and a persisten… --- ## [Change of Medication](https://forum.mssociety.org.uk/t/change-of-medication/80759)
**Author:** [@laceyhome1](https://forum.mssociety.org.uk/u/laceyhome1)\ **Replies:** 8\ **Last updated:** [30 July 2026 08:37 UTC](https://forum.mssociety.org.uk/t/change-of-medication/80759 "2026-07-30T08:37:23Z")
Hi, I have had SPMS since 2000, 26 years, I live in Essex which may be important. My treatment for 26 years has been a 5 day course of methylprednisolone, steroids, initially intravenously and then orally for 20 years 50… --- ## [if you could go back, would you choose the same treatment again?](https://forum.mssociety.org.uk/t/if-you-could-go-back-would-you-choose-the-same-treatment-again/81521)
**Author:** [@Snowyzlala](https://forum.mssociety.org.uk/u/Snowyzlala)\ **Replies:** 1\ **Last updated:** [23 July 2026 23:31 UTC](https://forum.mssociety.org.uk/t/if-you-could-go-back-would-you-choose-the-same-treatment-again/81521 "2026-07-23T23:31:37Z")
Hi everyone, I know treatment is a very personal decision and what works for one person won’t necessarily work for another, but I was interested to hear people’s experiences. Looking back, would you still choose the di… --- ## [Raised ALT Levels](https://forum.mssociety.org.uk/t/raised-alt-levels/81520)
**Author:** [@whitehart75](https://forum.mssociety.org.uk/u/whitehart75)\ **Replies:** 0\ **Last updated:** [23 July 2026 17:39 UTC](https://forum.mssociety.org.uk/t/raised-alt-levels/81520 "2026-07-23T17:39:04Z")
I’ve been on Siponimod for going on 3 years,the last 3 months have seen my ALT levels rise greatly,my level yesterday after a blood test was 154,during which time the only change was me being on a 16:8 diet,ive been told… [Previous page](https://forum.mssociety.org.uk/c/symptoms-and-treatments/17.md) [Next page](https://forum.mssociety.org.uk/c/symptoms-and-treatments/17.md?page=2)