# New diagnosis and before diagnosis **URL:** https://forum.mssociety.org.uk/c/new-diagnosis-and-before-diagnosis/12.md [Latest](https://forum.mssociety.org.uk/latest.md) · [Categories](https://forum.mssociety.org.uk/categories.md) · [Tags](https://forum.mssociety.org.uk/tags.md) --- ## [Your first symptoms - looking back..](https://forum.mssociety.org.uk/t/your-first-symptoms-looking-back/36034)
**Author:** [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Replies:** 419\ **Last updated:** [14 September 2026 10:56 UTC](https://forum.mssociety.org.uk/t/your-first-symptoms-looking-back/36034 "2026-09-14T10:56:53Z")
Hi there, I am new to the site. Just waiting a brain scan re: my symptoms. Been put on a ‘watch and wait’ list by neurologist years ago and things have maybe progressed a bit to say the least. Something going on anyway! … --- ## [A brief beginner's guide to the brain and MRI](https://forum.mssociety.org.uk/t/a-brief-beginners-guide-to-the-brain-and-mri/30955)
**Author:** [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Replies:** 103\ **Last updated:** [13 August 2026 12:55 UTC](https://forum.mssociety.org.uk/t/a-brief-beginners-guide-to-the-brain-and-mri/30955 "2026-08-13T12:55:18Z")
As some of you know, I often answer posts on here asking for help to understand what a neurologist’s letter or radiologist’s report means. What you probably don’t know is that it is a pretty time-consuming task and, ever… --- ## [Hello. Newly diagnosed.](https://forum.mssociety.org.uk/t/hello-newly-diagnosed/81940)
**Author:** [@sarah\_freeth](https://forum.mssociety.org.uk/u/sarah_freeth)\ **Replies:** 2\ **Last updated:** [20 October 2026 16:31 UTC](https://forum.mssociety.org.uk/t/hello-newly-diagnosed/81940 "2026-10-20T16:31:25Z")
Hi everyone, I’m Sarah. I’ve recently joined the group after being diagnosed with MS last Thursday, following a neurology appointment where my brain and spinal MRI results were reviewed. I’m still trying to get my head … --- ## [Clear lumbar puncture, what next?](https://forum.mssociety.org.uk/t/clear-lumbar-puncture-what-next/80740)
**Author:** [@Scarlet](https://forum.mssociety.org.uk/u/Scarlet)\ **Replies:** 10\ **Last updated:** [17 October 2026 18:46 UTC](https://forum.mssociety.org.uk/t/clear-lumbar-puncture-what-next/80740 "2026-10-17T18:46:24Z")
Hi, After a 3 month wait I was told on Friday that I had a clear lumbar puncture and therefore don’t yet meet the criteria for a diagnosis. I had optic neuritis in June which followed a mri that showed brain and spine l… --- ## [New Diagnosis of RRM](https://forum.mssociety.org.uk/t/new-diagnosis-of-rrm/81901)
**Author:** [@catiammldias](https://forum.mssociety.org.uk/u/catiammldias)\ **Replies:** 5\ **Last updated:** [16 October 2026 14:09 UTC](https://forum.mssociety.org.uk/t/new-diagnosis-of-rrm/81901 "2026-10-16T14:09:10Z")
Hi everyone, I am Catia with 44 years old, recently diagnosed with RRMS. I am scared and trying to get more information about it, I can’t even describe what me and my family are been through at these point, because it’s … --- ## [Could this Be Partial Transverse Myelitis](https://forum.mssociety.org.uk/t/could-this-be-partial-transverse-myelitis/81797)
**Author:** [@jgailbeek](https://forum.mssociety.org.uk/u/jgailbeek)\ **Replies:** 1\ **Last updated:** [13 October 2026 11:31 UTC](https://forum.mssociety.org.uk/t/could-this-be-partial-transverse-myelitis/81797 "2026-10-13T11:31:51Z")
Hi there! I’ve been on a rather scary and quite heavy health journey for the past year now. My symptoms stared with a random cold sensation on my right ankle. This led me to believe I may be dealing with circulation issu… --- ## [Hair loss](https://forum.mssociety.org.uk/t/hair-loss/18244)
**Author:** [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Replies:** 9\ **Last updated:** [6 October 2026 15:32 UTC](https://forum.mssociety.org.uk/t/hair-loss/18244 "2026-10-06T15:32:11Z")
Is this another MS symptom? Been happening for a while, but just been in the bath, washed my hair and most of it seems to be in the water! Or is it stress? Had my hair cut abit back as it had got long and thought hair lo… --- ## [Frightened and feeling very alone](https://forum.mssociety.org.uk/t/frightened-and-feeling-very-alone/81786)
**Author:** [@Jk32](https://forum.mssociety.org.uk/u/Jk32)\ **Replies:** 5\ **Last updated:** [6 October 2026 15:29 UTC](https://forum.mssociety.org.uk/t/frightened-and-feeling-very-alone/81786 "2026-10-06T15:29:48Z")
Hi everyone, first timer here in the forum. I’m not really sure why I’m posting ..I think just to feel less alone with this all really. I don’t yet have a diagnosis. Been to see GP only one week ago who agreed to refer … --- ## [Migraines, waiting on mri, grieving old life](https://forum.mssociety.org.uk/t/migraines-waiting-on-mri-grieving-old-life/81841)
**Author:** [@lizzieblackledge](https://forum.mssociety.org.uk/u/lizzieblackledge)\ **Replies:** 7\ **Last updated:** [6 October 2026 10:33 UTC](https://forum.mssociety.org.uk/t/migraines-waiting-on-mri-grieving-old-life/81841 "2026-10-06T10:33:15Z")
Hello Im 25 and recently hit the brakes with my career due to debilitating migraine. Im scheduled for an MRI as my neurologist wants to check some abnormal symptoms for migraine. I have been trying to reassure myself it … --- ## [Still not diagnosed, bit about me](https://forum.mssociety.org.uk/t/still-not-diagnosed-bit-about-me/81750)
**Author:** [@nicfoyle13](https://forum.mssociety.org.uk/u/nicfoyle13)\ **Replies:** 13\ **Last updated:** [4 October 2026 16:33 UTC](https://forum.mssociety.org.uk/t/still-not-diagnosed-bit-about-me/81750 "2026-10-04T16:33:28Z")
Hi all, my name is Nicola. I started of with a tremor in my right hand now they are exploring ms, nmo amd mog. Ive 5 lesions including left eye optic neuritis which is high at 250. They were swaying towards more ms but … --- ## [pramiprixole and gambling](https://forum.mssociety.org.uk/t/pramiprixole-and-gambling/78430)
**Author:** [@liviasmith52](https://forum.mssociety.org.uk/u/liviasmith52)\ **Replies:** 1\ **Last updated:** [1 October 2026 15:51 UTC](https://forum.mssociety.org.uk/t/pramiprixole-and-gambling/78430 "2026-10-01T15:51:48Z")
has anyone out there experienced this side e ffect --- ## [VEP Results - What now?](https://forum.mssociety.org.uk/t/vep-results-what-now/78720)
**Author:** [@ojs2802](https://forum.mssociety.org.uk/u/ojs2802)\ **Replies:** 7\ **Last updated:** [30 September 2026 15:32 UTC](https://forum.mssociety.org.uk/t/vep-results-what-now/78720 "2026-09-30T15:32:16Z")
Hi Folks, This is my first post so please be gentle! 2 years ago I had an attack of optic neuritis and was referred by my optometrist to a neuroopthalmologist after an abnormal OCT scan showing pale and atrophic optic d… --- ## [Exercise!](https://forum.mssociety.org.uk/t/exercise/79357)
**Author:** [@anonymous142](https://forum.mssociety.org.uk/u/anonymous142)\ **Replies:** 4\ **Last updated:** [29 September 2026 14:22 UTC](https://forum.mssociety.org.uk/t/exercise/79357 "2026-09-29T14:22:24Z")
Hi everyone. I’m new here waiting to see what MRI results show. Symptoms are shooting pains in arms legs and feet, twitching muscles, bladder control problems, fatigue, brain fog and a toe that moves on its own! (Neuro s… --- ## [Going round in circles](https://forum.mssociety.org.uk/t/going-round-in-circles/69594)
**Author:** [@Phantom](https://forum.mssociety.org.uk/u/Phantom)\ **Replies:** 23\ **Last updated:** [24 September 2026 20:11 UTC](https://forum.mssociety.org.uk/t/going-round-in-circles/69594 "2026-09-24T20:11:44Z")
Hi all, I first registered on the forum in 2019 after having optic neuritis in 2014 and was given a diagnosis of CIS and evidence of a few brain lesions so was added to a watch list. I haven’t seen my neuro for 2 years … --- ## [MRI Scan- brain and cervical spine only](https://forum.mssociety.org.uk/t/mri-scan-brain-and-cervical-spine-only/79247)
**Author:** [@Nokkerboff](https://forum.mssociety.org.uk/u/Nokkerboff)\ **Replies:** 7\ **Last updated:** [23 September 2026 07:36 UTC](https://forum.mssociety.org.uk/t/mri-scan-brain-and-cervical-spine-only/79247 "2026-09-23T07:36:16Z")
Hi, I had my MRI scan today. They did a brain and cervical spine scan. I was expecting them to scan the entire spine especially as much of my symptoms are in my legs. Is it usual to just have the brain and cervical spin… --- ## [Newly diagnosed 37F with possible PPMS and new baby](https://forum.mssociety.org.uk/t/newly-diagnosed-37f-with-possible-ppms-and-new-baby/81602)
**Author:** [@bluebird](https://forum.mssociety.org.uk/u/bluebird)\ **Replies:** 11\ **Last updated:** [22 September 2026 08:37 UTC](https://forum.mssociety.org.uk/t/newly-diagnosed-37f-with-possible-ppms-and-new-baby/81602 "2026-09-22T08:37:45Z")
Hi everyone, Hope you are all well and enjoying the summer. Reading posts on this forum has brought me a lot of comfort this year. I’ve had a very tough time with my diagnosis at the moment and am hoping to find some so… --- ## [Clear MRI, nerve damage](https://forum.mssociety.org.uk/t/clear-mri-nerve-damage/33585)
**Author:** [@StaceyLeigh](https://forum.mssociety.org.uk/u/StaceyLeigh)\ **Replies:** 7\ **Last updated:** [16 September 2026 09:33 UTC](https://forum.mssociety.org.uk/t/clear-mri-nerve-damage/33585 "2026-09-16T09:33:22Z")
Good Morning all. i have posted on this page a few months back, about a heap of symptoms that were on going, I had a MRI on brain and spine, which was clear. (Which is great news) However I am still having symptoms. my… --- ## [Likelihood of MS after clear MRI before symptoms worsened ](https://forum.mssociety.org.uk/t/likelihood-of-ms-after-clear-mri-before-symptoms-worsened/81763)
**Author:** [@laurmch](https://forum.mssociety.org.uk/u/laurmch)\ **Replies:** 0\ **Last updated:** [14 September 2026 15:57 UTC](https://forum.mssociety.org.uk/t/likelihood-of-ms-after-clear-mri-before-symptoms-worsened/81763 "2026-09-14T15:57:03Z")
Wondering if it is worth pushing for further investigations… my partner has been suffering from a range of symptoms in the last few years. Started slow and have been worsening more rapidly this year. His uncle has MS whi… --- ## [Prolapsed l5 disc and ms symptoms](https://forum.mssociety.org.uk/t/prolapsed-l5-disc-and-ms-symptoms/15029)
**Author:** [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Replies:** 15\ **Last updated:** [14 September 2026 11:22 UTC](https://forum.mssociety.org.uk/t/prolapsed-l5-disc-and-ms-symptoms/15029 "2026-09-14T11:22:53Z")
I have never posted on a site before, so bare with me! I was diagnosed with and l5 s1 prolapse disc over a year ago and seen a nurosurgoen who believes my symptoms are not just disc related but also a nurlogical problem.… --- ## [Waiting around](https://forum.mssociety.org.uk/t/waiting-around/81673)
**Author:** [@Everythingisunknown](https://forum.mssociety.org.uk/u/Everythingisunknown)\ **Replies:** 4\ **Last updated:** [14 September 2026 11:12 UTC](https://forum.mssociety.org.uk/t/waiting-around/81673 "2026-09-14T11:12:43Z")
Hi everyone, I’d like to say a big hello, and that I hope you’re all doing as well as can be. I’d like to start off by saying that I don’t have a diagnosis, but my doctor suspects Ms and is referring me for a brain scan… --- ## [Newly diagnosed. Overwhelmed and lost](https://forum.mssociety.org.uk/t/newly-diagnosed-overwhelmed-and-lost/81624)
**Author:** [@mythh64](https://forum.mssociety.org.uk/u/mythh64)\ **Replies:** 5\ **Last updated:** [14 September 2026 09:23 UTC](https://forum.mssociety.org.uk/t/newly-diagnosed-overwhelmed-and-lost/81624 "2026-09-14T09:23:03Z")
I am 25 and was diagnosed with relapsing remitting MS just this afternoon. After eight months of intermittent vertigo, I had what I now understand to be an MS episode - extreme dizziness, disorientation, and weakness/num… --- ## [Better Sleep Made Simple: Improve Your Sleep Without Changing Everything](https://forum.mssociety.org.uk/t/better-sleep-made-simple-improve-your-sleep-without-changing-everything/81428)
**Author:** [@rowan1](https://forum.mssociety.org.uk/u/rowan1)\ **Replies:** 15\ **Last updated:** [3 September 2026 19:51 UTC](https://forum.mssociety.org.uk/t/better-sleep-made-simple-improve-your-sleep-without-changing-everything/81428 "2026-09-03T19:51:20Z")
I’ve been trying to figure out how to increase sleep quality because even after getting 7-8 hours of sleep, I still wake up feeling tired. I thought sleeping longer was the answer, but it turns out the quality of sleep m… --- ## [MRI: Private or NHS?](https://forum.mssociety.org.uk/t/mri-private-or-nhs/81135)
**Author:** [@bgrace26](https://forum.mssociety.org.uk/u/bgrace26)\ **Replies:** 9\ **Last updated:** [2 September 2026 19:32 UTC](https://forum.mssociety.org.uk/t/mri-private-or-nhs/81135 "2026-09-02T19:32:09Z")
Hello, looking for some advice please! I had my first appointment yesterday with a private neurologist who did some quick neurological tests on me (all normal except slightly reduced sensation in right side, but that was… --- ## [Spinal MRI without head cage?](https://forum.mssociety.org.uk/t/spinal-mri-without-head-cage/81313)
**Author:** [@samanthataylor16](https://forum.mssociety.org.uk/u/samanthataylor16)\ **Replies:** 13\ **Last updated:** [2 September 2026 19:31 UTC](https://forum.mssociety.org.uk/t/spinal-mri-without-head-cage/81313 "2026-09-02T19:31:14Z")
I’m awaiting an MS diagnosis. I’ve had a brain MRI and lumbar puncture. I’ve got a whole spine MRI on Sunday. I phoned the hospital today and asked if I have to have the dreaded cage (it’s recommended) but they can do it… --- ## [Newly diagnosed and in need of some positivity!](https://forum.mssociety.org.uk/t/newly-diagnosed-and-in-need-of-some-positivity/32275)
**Author:** [@ET1991](https://forum.mssociety.org.uk/u/ET1991)\ **Replies:** 13\ **Last updated:** [2 September 2026 19:09 UTC](https://forum.mssociety.org.uk/t/newly-diagnosed-and-in-need-of-some-positivity/32275 "2026-09-02T19:09:39Z")
I’m a 27 year old female and I was diagnosed with RRMS just under a week ago. In a way I wasn’t shocked. I’d suspected it for a while but it still felt like the air had been taken out of me when the consultant told me. W… --- ## [Just feeling really overwhelmed and confused right now](https://forum.mssociety.org.uk/t/just-feeling-really-overwhelmed-and-confused-right-now/81595)
**Author:** [@ambersian2022](https://forum.mssociety.org.uk/u/ambersian2022)\ **Replies:** 5\ **Last updated:** [26 August 2026 20:56 UTC](https://forum.mssociety.org.uk/t/just-feeling-really-overwhelmed-and-confused-right-now/81595 "2026-08-26T20:56:37Z")
Hello (35f) I am not diagnosed with MS nor did I ever think I would end up here but here we are. Had an MRI in Feb (ENT referred in June 25) due to one sided hearing loss, dizzyness and balence issues. Last month I had … --- ## [M/S and A/S is there anybody out there?](https://forum.mssociety.org.uk/t/m-s-and-a-s-is-there-anybody-out-there/17258)
**Author:** [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\ **Replies:** 5\ **Last updated:** [22 August 2026 11:39 UTC](https://forum.mssociety.org.uk/t/m-s-and-a-s-is-there-anybody-out-there/17258 "2026-08-22T11:39:38Z")
Hey all, was diagnosed with M/S about a year ago. It’s fair to say that it has taken some time to get my head around it. I was also diagnosed with A/S (Ankylosing spondylitis) around 15 years ago and was curious if anyon… --- ## [Looking for advice for ms neurologist /specialist ](https://forum.mssociety.org.uk/t/looking-for-advice-for-ms-neurologist-specialist/81613)
**Author:** [@digower](https://forum.mssociety.org.uk/u/digower)\ **Replies:** 1\ **Last updated:** [17 August 2026 11:25 UTC](https://forum.mssociety.org.uk/t/looking-for-advice-for-ms-neurologist-specialist/81613 "2026-08-17T11:25:38Z")
Looking for advice on neurologist / MS specialist Hi everyone, I’m hoping for some advice from people who have been through a similar situation. I have been experiencing neurological symptoms for several years, includi… --- ## [1st message](https://forum.mssociety.org.uk/t/1st-message/81463)
**Author:** [@melandscully](https://forum.mssociety.org.uk/u/melandscully)\ **Replies:** 11\ **Last updated:** [11 August 2026 13:51 UTC](https://forum.mssociety.org.uk/t/1st-message/81463 "2026-08-11T13:51:30Z")
Hello newly diagnosed after experiencing symptoms out of the blue. Trying to stay positive but worried about the future. I’m 57. --- ## [Sudden symptoms](https://forum.mssociety.org.uk/t/sudden-symptoms/81486)
**Author:** [@sib1234](https://forum.mssociety.org.uk/u/sib1234)\ **Replies:** 2\ **Last updated:** [11 August 2026 10:22 UTC](https://forum.mssociety.org.uk/t/sudden-symptoms/81486 "2026-08-11T10:22:51Z")
Hi all about a week ago I suddenly had tingling in the bottom of my left foot , within hour it had developed into my calf and my leg felt heavy and weird. The following morning I had weakness in my leg , I couldn’t move… [Next page](https://forum.mssociety.org.uk/c/new-diagnosis-and-before-diagnosis/12.md?page=1)