# Caring for someone with MS

**URL:** https://forum.mssociety.org.uk/c/caring-for-someone-with-ms/7.md?page=2

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**Page:** 3

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## [Relationship with someone with MS](https://forum.mssociety.org.uk/t/relationship-with-someone-with-ms/38776)

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**Author:** [@Inactive\_User](https://forum.mssociety.org.uk/u/Inactive_User)\
**Replies:** 15\
**Last updated:** [16 September 2024 17:39 UTC](https://forum.mssociety.org.uk/t/relationship-with-someone-with-ms/38776 "2024-09-16T17:39:35Z")

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## [Ms dismissal](https://forum.mssociety.org.uk/t/ms-dismissal/75160)

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**Author:** [@baluppal1980](https://forum.mssociety.org.uk/u/baluppal1980)\
**Replies:** 3\
**Last updated:** [4 September 2024 17:46 UTC](https://forum.mssociety.org.uk/t/ms-dismissal/75160 "2024-09-04T17:46:53Z")

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Hi everyone, I’m reaching out for advice and support. My partner, who was diagnosed with MS in 2015, has been steadily employed but his symptoms have progressed over the years, resulting in increased absences from work.…

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## [Depression and Trying to make….something](https://forum.mssociety.org.uk/t/depression-and-trying-to-make-something/75713)

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**Author:** [@TryingSoHard](https://forum.mssociety.org.uk/u/TryingSoHard)\
**Replies:** 31\
**Last updated:** [21 August 2024 13:58 UTC](https://forum.mssociety.org.uk/t/depression-and-trying-to-make-something/75713 "2024-08-21T13:58:22Z")

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So, I was wondering if anyone has any words of wisdom, as I am at the end of my tether. I am mostly a carer for my wife now, she has had MS now for 18 years (she is 55). She is obviously very depressed, in fact both beca…

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## [Looking for Home Care Recommendations](https://forum.mssociety.org.uk/t/looking-for-home-care-recommendations/76884)

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**Author:** [@Lottie51](https://forum.mssociety.org.uk/u/Lottie51)\
**Replies:** 1\
**Last updated:** [15 August 2024 20:55 UTC](https://forum.mssociety.org.uk/t/looking-for-home-care-recommendations/76884 "2024-08-15T20:55:28Z")

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Hi Everyone, i’m new to this forum, and to forums in general! I’m looking for some help with finding good home care for my dad who has progressive MS. Between us we can cover general things like meals and cleaning, but t…

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## [Balancing my role as a carer for my husband with MS and my sister with Alzheimer's ](https://forum.mssociety.org.uk/t/balancing-my-role-as-a-carer-for-my-husband-with-ms-and-my-sister-with-alzheimers/76690)

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**Author:** [@BethM](https://forum.mssociety.org.uk/u/BethM)\
**Replies:** 1\
**Last updated:** [3 August 2024 13:45 UTC](https://forum.mssociety.org.uk/t/balancing-my-role-as-a-carer-for-my-husband-with-ms-and-my-sister-with-alzheimers/76690 "2024-08-03T13:45:05Z")

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My husband was diagnosed with PPMS during lock down, and my sister was diagnosed with Alzheimer’s last year. At times, I feel overwhelmed by this , especially as my brother died just over a month ago and I have health pr…

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## [New member so Big hello/intro plus Pilates/Yoga/HIIT exercise advice needed.](https://forum.mssociety.org.uk/t/new-member-so-big-hello-intro-plus-pilates-yoga-hiit-exercise-advice-needed/62428)

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**Author:** [@WifeofhubbywithMS](https://forum.mssociety.org.uk/u/WifeofhubbywithMS)\
**Replies:** 4\
**Last updated:** [10 July 2024 18:42 UTC](https://forum.mssociety.org.uk/t/new-member-so-big-hello-intro-plus-pilates-yoga-hiit-exercise-advice-needed/62428 "2024-07-10T18:42:41Z")

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Hi guys, first post here - My name is Amy, and i have a husband who was diagnosed with RRMS in february 2018 after a relapse caused stroke like symptoms which prompted a MRI which detected that his brain was “peppered” w…

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## [I'm just so angry at it all](https://forum.mssociety.org.uk/t/im-just-so-angry-at-it-all/76465)

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**Author:** [@Wishy](https://forum.mssociety.org.uk/u/Wishy)\
**Replies:** 3\
**Last updated:** [12 July 2024 14:45 UTC](https://forum.mssociety.org.uk/t/im-just-so-angry-at-it-all/76465 "2024-07-12T14:45:31Z")

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I’m new to this forum. My husband was diagnosed with ms about a year and a half ago after very rapidly going from a marathon runner to a wheelchair user who couldn’t cut his own food in a matter of months. He’s on tysav…

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## [Mobility scooter/powered wheelchair recommendations](https://forum.mssociety.org.uk/t/mobility-scooter-powered-wheelchair-recommendations/76197)

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**Author:** [@LG17](https://forum.mssociety.org.uk/u/LG17)\
**Replies:** 3\
**Last updated:** [6 July 2024 10:57 UTC](https://forum.mssociety.org.uk/t/mobility-scooter-powered-wheelchair-recommendations/76197 "2024-07-06T10:57:07Z")

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I’m looking for recommendations for mobility scooters/powered wheelchairs that can go in the back of a car. Ideally one that it not to heavy on the hands when driving/steering. Also advise on where to buy from that would…

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## [Narcissistic personality and multiple sclerosis](https://forum.mssociety.org.uk/t/narcissistic-personality-and-multiple-sclerosis/68859)

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**Author:** [@Lol](https://forum.mssociety.org.uk/u/Lol)\
**Replies:** 20\
**Last updated:** [5 July 2024 17:31 UTC](https://forum.mssociety.org.uk/t/narcissistic-personality-and-multiple-sclerosis/68859 "2024-07-05T17:31:35Z")

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Is there a connection? My partner has so many traits of narcissist personality disorder and i have struggled for years making myself poorly trying to stand hy him. I dont no when enough is enough as im very empathic. H…

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## [At my wits end.](https://forum.mssociety.org.uk/t/at-my-wits-end/74770)

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**Author:** [@K8TLoo](https://forum.mssociety.org.uk/u/K8TLoo)\
**Replies:** 14\
**Last updated:** [1 July 2024 21:14 UTC](https://forum.mssociety.org.uk/t/at-my-wits-end/74770 "2024-07-01T21:14:36Z")

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Hi new on here. I need some advice from carers etc My partner has MS. Mobility issues, fatigue, numbness, pain. But the real problem is that he has become so angry and negative. He thinks that everyone is against him bu…

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## [Please advise and Hello! ](https://forum.mssociety.org.uk/t/please-advise-and-hello/76144)

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**Author:** [@helen2](https://forum.mssociety.org.uk/u/helen2)\
**Replies:** 3\
**Last updated:** [12 June 2024 13:11 UTC](https://forum.mssociety.org.uk/t/please-advise-and-hello/76144 "2024-06-12T13:11:08Z")

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Hi. I have a 49 year old brother who is living on his own 2 hours away in London in a sheltered apartment complex. He has carers visit 3 times a day for very basic needs but they’re not allowed to even cut his nails. H…

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## [My husband has MS and it's getting worse. What did I do? I'm really scared](https://forum.mssociety.org.uk/t/my-husband-has-ms-and-its-getting-worse-what-did-i-do-im-really-scared/76033)

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**Author:** [@safiyyawinter](https://forum.mssociety.org.uk/u/safiyyawinter)\
**Replies:** 5\
**Last updated:** [7 June 2024 22:39 UTC](https://forum.mssociety.org.uk/t/my-husband-has-ms-and-its-getting-worse-what-did-i-do-im-really-scared/76033 "2024-06-07T22:39:44Z")

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My husband was diagnosed with MS about 4 years ago, we have been married only 1 year, but in the past year his MS has become really bad. Before it was not very noticeable and didn’t have much affect on his life, but now …

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## [Holidays with Hoists](https://forum.mssociety.org.uk/t/holidays-with-hoists/75961)

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**Author:** [@michelle\_40](https://forum.mssociety.org.uk/u/michelle_40)\
**Replies:** 1\
**Last updated:** [27 May 2024 18:15 UTC](https://forum.mssociety.org.uk/t/holidays-with-hoists/75961 "2024-05-27T18:15:19Z")

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Hello I have a 54 year old friend with advanced MS. She has sadly just lost her husband (and carer), and I with a group of her friends would like to take her away for a break . We can organise the transport, and wheel…

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## [How to move on from a tough day](https://forum.mssociety.org.uk/t/how-to-move-on-from-a-tough-day/75708)

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**Author:** [@behappy](https://forum.mssociety.org.uk/u/behappy)\
**Replies:** 3\
**Last updated:** [26 May 2024 10:36 UTC](https://forum.mssociety.org.uk/t/how-to-move-on-from-a-tough-day/75708 "2024-05-26T10:36:05Z")

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Hello Today has been a tough day - MS related. My mum with MS had a difficult morning and I needed to pick up the pieces. Its 2pm now and my heart is hearting, anxiety is high and just feeling so low and just want to gi…

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## [My Dad has MS and i’m really trying to understand it more so I can support him](https://forum.mssociety.org.uk/t/my-dad-has-ms-and-i-m-really-trying-to-understand-it-more-so-i-can-support-him/75935)

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**Author:** [@DaveBaker60](https://forum.mssociety.org.uk/u/DaveBaker60)\
**Replies:** 3\
**Last updated:** [25 May 2024 11:18 UTC](https://forum.mssociety.org.uk/t/my-dad-has-ms-and-i-m-really-trying-to-understand-it-more-so-i-can-support-him/75935 "2024-05-25T11:18:07Z")

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Hi there. My name is Charlotte. My Dad was diagnosed with MS about 6 years ago and it has really affected him, mentally and physically slowly over the years. MS is not something I ever thought i’d have to deal with (as …

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## [Jude bladder supplements ](https://forum.mssociety.org.uk/t/jude-bladder-supplements/75854)

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**Author:** [@LG17](https://forum.mssociety.org.uk/u/LG17)\
**Replies:** 0\
**Last updated:** [17 May 2024 17:11 UTC](https://forum.mssociety.org.uk/t/jude-bladder-supplements/75854 "2024-05-17T17:11:53Z")

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Hello, has anyone found that Jude bladder supplements have been beneficial? Thank you.

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## [scared for the future with my mum who has PPMS](https://forum.mssociety.org.uk/t/scared-for-the-future-with-my-mum-who-has-ppms/75389)

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**Author:** [@natured-harness0](https://forum.mssociety.org.uk/u/natured-harness0)\
**Replies:** 6\
**Last updated:** [7 May 2024 17:52 UTC](https://forum.mssociety.org.uk/t/scared-for-the-future-with-my-mum-who-has-ppms/75389 "2024-05-07T17:52:34Z")

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Hi, im new here, trying to get the best advice to help my mum who really won’t accept help. she was diagnosed a few years ago, and since then she has deteriorated rapidly, now relying on a stick to help her get around an…

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## [Partner diagnosed with MS -he hasn't told anyone else yet apart from me ](https://forum.mssociety.org.uk/t/partner-diagnosed-with-ms-he-hasnt-told-anyone-else-yet-apart-from-me/75682)

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**Author:** [@Allthebest56](https://forum.mssociety.org.uk/u/Allthebest56)\
**Replies:** 3\
**Last updated:** [5 May 2024 16:33 UTC](https://forum.mssociety.org.uk/t/partner-diagnosed-with-ms-he-hasnt-told-anyone-else-yet-apart-from-me/75682 "2024-05-05T16:33:40Z")

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Hello I’m new on here and feeling quite overwhemed as i am trying to get my partner to open up more about his diagnosis.He had tests a while ago during the pandemic and they found lesions but has only got a formal diagno…

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## [high risk of developing MS](https://forum.mssociety.org.uk/t/high-risk-of-developing-ms/68610)

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**Author:** [@agoodlife](https://forum.mssociety.org.uk/u/agoodlife)\
**Replies:** 2\
**Last updated:** [17 April 2024 17:42 UTC](https://forum.mssociety.org.uk/t/high-risk-of-developing-ms/68610 "2024-04-17T17:42:14Z")

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Hi new on here, my friends partner has been told (by GP) that she is very high risk for developing MS (based on lab tests, med history (mum RIP with MS). Both are trying to absorb the news. Any tips on how I can support…

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## [Mobile phone](https://forum.mssociety.org.uk/t/mobile-phone/12250)

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**Author:** [@ayjay](https://forum.mssociety.org.uk/u/ayjay)\
**Replies:** 14\
**Last updated:** [15 April 2024 01:07 UTC](https://forum.mssociety.org.uk/t/mobile-phone/12250 "2024-04-15T01:07:51Z")

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Does anyone have a simple mobile phone (not a smartphone) with large buttons and with predictive text? I’m trying to find something for my wife and finding one with predictive text is so far the stumbling block, (it’s n…

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## [Training to help lift relative with MS](https://forum.mssociety.org.uk/t/training-to-help-lift-relative-with-ms/75464)

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**Author:** [@Ksr712](https://forum.mssociety.org.uk/u/Ksr712)\
**Replies:** 0\
**Last updated:** [16 April 2024 17:55 UTC](https://forum.mssociety.org.uk/t/training-to-help-lift-relative-with-ms/75464 "2024-04-16T17:55:36Z")

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Hello I would really like to learn how best to help my mum with lifting her and moving her from her chair or mobility scooter into the car or onto the toilet, sofa etc. I am not her primary carer, but to give my dad a …

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## [Abusive behaviour as MS condition worsens](https://forum.mssociety.org.uk/t/abusive-behaviour-as-ms-condition-worsens/68264)

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**Author:** [@Busy\_all\_the\_time](https://forum.mssociety.org.uk/u/Busy_all_the_time)\
**Replies:** 15\
**Last updated:** [9 April 2024 12:02 UTC](https://forum.mssociety.org.uk/t/abusive-behaviour-as-ms-condition-worsens/68264 "2024-04-09T12:02:56Z")

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I’m continually on the receiving end of abusive behaviour when my husband struggles to do even the smallest of jobs and either injures himself or breaks whatever won’t go right. Seriously getting sick and tired and wonde…

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## [RRM and Life insurance](https://forum.mssociety.org.uk/t/rrm-and-life-insurance/68250)

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**Author:** [@Motherhen](https://forum.mssociety.org.uk/u/Motherhen)\
**Replies:** 2\
**Last updated:** [21 June 2022 07:34 UTC](https://forum.mssociety.org.uk/t/rrm-and-life-insurance/68250 "2022-06-21T07:34:41Z")

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Hi i am new on here.please can anyone help. a family member has RRM MS and was wondering if anyone knows of any insurance companies that will except them

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## [Newbie but caring a long time ](https://forum.mssociety.org.uk/t/newbie-but-caring-a-long-time/74834)

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**Author:** [@TooBlue](https://forum.mssociety.org.uk/u/TooBlue)\
**Replies:** 1\
**Last updated:** [21 February 2024 17:03 UTC](https://forum.mssociety.org.uk/t/newbie-but-caring-a-long-time/74834 "2024-02-21T17:03:47Z")

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Hi Im new here, i meant to join before but kept putting it off. Living in denial I suppose. I was a young carer for my Mum who has ms. Still doing it yet. I struggle a lot with being a carer, but thats a story for anoth…

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## [Hobby for my mum with SPMS](https://forum.mssociety.org.uk/t/hobby-for-my-mum-with-spms/74738)

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**Author:** [@Ocean23](https://forum.mssociety.org.uk/u/Ocean23)\
**Replies:** 4\
**Last updated:** [12 February 2024 18:15 UTC](https://forum.mssociety.org.uk/t/hobby-for-my-mum-with-spms/74738 "2024-02-12T18:15:19Z")

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Hi everyone, I’m asking for my mum, who has SPMS, about any hobbies she could do or anything to keep her occupied during the evenings? I think she struggles to think of things to do and so often just resorts to watchin…

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## [Words of wisdom?](https://forum.mssociety.org.uk/t/words-of-wisdom/74699)

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**Author:** [@Sarahx](https://forum.mssociety.org.uk/u/Sarahx)\
**Replies:** 3\
**Last updated:** [7 February 2024 21:24 UTC](https://forum.mssociety.org.uk/t/words-of-wisdom/74699 "2024-02-07T21:24:55Z")

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Hello, I have been wih my partner for 7 years, we discussed my MS when we first met and how lucky I was that my symptoms were minimal. I had a massive relapse last summer and now have major mobility and fatigue issues. …

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## [Rebifsmart query?](https://forum.mssociety.org.uk/t/rebifsmart-query/74493)

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**Author:** [@mckernanmatt91](https://forum.mssociety.org.uk/u/mckernanmatt91)\
**Replies:** 1\
**Last updated:** [20 January 2024 21:58 UTC](https://forum.mssociety.org.uk/t/rebifsmart-query/74493 "2024-01-20T21:58:48Z")

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Hi All, im new to the forum, my sister was recently diagnosed with MS and is on Rebif Interferon. She was helped to understand how the machine works and is able to take it herself but has had a few problems with the mach…

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## [How do I help my bf with ms ????](https://forum.mssociety.org.uk/t/how-do-i-help-my-bf-with-ms/74447)

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**Author:** [@pattimasters95](https://forum.mssociety.org.uk/u/pattimasters95)\
**Replies:** 5\
**Last updated:** [18 January 2024 17:05 UTC](https://forum.mssociety.org.uk/t/how-do-i-help-my-bf-with-ms/74447 "2024-01-18T17:05:59Z")

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Hi my name is Patti and my bf was diagnosed with me a few years ago he Tould me and is struggling everyday bc of it he in pain 24 7 what do I do what can I say to him :frowning: I’m so lost and I feel sooo much pain and …

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## [Caring for Father with late diagnosis (73yrs old) health deteriorating fast ](https://forum.mssociety.org.uk/t/caring-for-father-with-late-diagnosis-73yrs-old-health-deteriorating-fast/74297)

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**Author:** [@Mabel0222](https://forum.mssociety.org.uk/u/Mabel0222)\
**Replies:** 2\
**Last updated:** [3 January 2024 18:07 UTC](https://forum.mssociety.org.uk/t/caring-for-father-with-late-diagnosis-73yrs-old-health-deteriorating-fast/74297 "2024-01-03T18:07:05Z")

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Hi, my dad was diagnosed with MS around 1.5 years ago after years of problems with his mobility… he is now 74 and has been told the scans show he could of had this for decades… within the last 3 years his mobility, menta…

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## [End stage what to expect](https://forum.mssociety.org.uk/t/end-stage-what-to-expect/72439)

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**Author:** [@Luciic](https://forum.mssociety.org.uk/u/Luciic)\
**Replies:** 3\
**Last updated:** [12 September 2023 16:59 UTC](https://forum.mssociety.org.uk/t/end-stage-what-to-expect/72439 "2023-09-12T16:59:44Z")

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Hi, is there anyone here who has been through the end stage of primary progressive ms with their loved ones? My mum has been bed bound for 2 month now, and has been in hospital for 5 weeks of this due to a bed sore. Sin…

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