# Caring for someone with MS **URL:** https://forum.mssociety.org.uk/c/caring-for-someone-with-ms/7.md [Latest](https://forum.mssociety.org.uk/latest.md) · [Categories](https://forum.mssociety.org.uk/categories.md) · [Tags](https://forum.mssociety.org.uk/tags.md) --- ## [Partner getting worse and using his ms](https://forum.mssociety.org.uk/t/partner-getting-worse-and-using-his-ms/81936)
**Author:** [@Joan](https://forum.mssociety.org.uk/u/Joan)\ **Replies:** 3\ **Last updated:** [22 October 2026 08:37 UTC](https://forum.mssociety.org.uk/t/partner-getting-worse-and-using-his-ms/81936 "2026-10-22T08:37:43Z")
I have been with my partner now 6 years last few years been a nightmare we eventually got carers in to put him to bed and get him up but he cancelled them his abuse is getting worse I have social coming out this week as … --- ## [Very depressed - hubby getting worsr](https://forum.mssociety.org.uk/t/very-depressed-hubby-getting-worsr/81894)
**Author:** [@Carin](https://forum.mssociety.org.uk/u/Carin)\ **Replies:** 2\ **Last updated:** [19 October 2026 19:14 UTC](https://forum.mssociety.org.uk/t/very-depressed-hubby-getting-worsr/81894 "2026-10-19T19:14:40Z")
Hi everyone. Just wanted to let my feelings out because I have no one to talk to about this problem. My husband is 65 years old, has had MS for about 30 years +. Lately he has been hospitalised with severe UTI infections… --- ## [All Possible Options](https://forum.mssociety.org.uk/t/all-possible-options/81916)
**Author:** [@garsh5711](https://forum.mssociety.org.uk/u/garsh5711)\ **Replies:** 0\ **Last updated:** [14 October 2026 15:38 UTC](https://forum.mssociety.org.uk/t/all-possible-options/81916 "2026-10-14T15:38:19Z")
Greetings from Florida, USA. My wife was diagnosed earlier this year with MS, we’re still not entirely sure what type because the first rounds of meds (Kesimpta) made her substantially worse and we ended up in the hospi… --- ## [Private MS Specialists](https://forum.mssociety.org.uk/t/private-ms-specialists/81803)
**Author:** [@Sgr789](https://forum.mssociety.org.uk/u/Sgr789)\ **Replies:** 4\ **Last updated:** [23 September 2026 12:17 UTC](https://forum.mssociety.org.uk/t/private-ms-specialists/81803 "2026-09-23T12:17:34Z")
Hi my dad is 75, diagnosed with relapsing MS at age 40. His mobility has become drastically worse over the last 6 months or so, following switching drugs to Mavenclad. His appointments with the NHS neurologist keep bein… --- ## [NHS Continuing Healthcare](https://forum.mssociety.org.uk/t/nhs-continuing-healthcare/12590)
**Author:** [@Richard\_Smith](https://forum.mssociety.org.uk/u/Richard_Smith)\ **Replies:** 8\ **Last updated:** [22 September 2026 17:52 UTC](https://forum.mssociety.org.uk/t/nhs-continuing-healthcare/12590 "2026-09-22T17:52:41Z")
Has anyone with MS applied for NHS Continuing Healthcare? Or have you applied for it for someone else? It is apparently a battle to obtain it. I have started the process on behalf of my wife who has PPMS. There was a sma… --- ## [Supporting my mum who has SPMS](https://forum.mssociety.org.uk/t/supporting-my-mum-who-has-spms/78704)
**Author:** [@Bex.S](https://forum.mssociety.org.uk/u/Bex.S)\ **Replies:** 2\ **Last updated:** [6 August 2026 16:12 UTC](https://forum.mssociety.org.uk/t/supporting-my-mum-who-has-spms/78704 "2026-08-06T16:12:44Z")
Hi, I’ve known about the MS Society and read posts from the forum for sometime, a lot of which I can relate to. But I’ve never actually posted anything about mine and my mum’s situation or asked for advice. I’ve been c… --- ## [Im sinking](https://forum.mssociety.org.uk/t/im-sinking/78862)
**Author:** [@abrits77](https://forum.mssociety.org.uk/u/abrits77)\ **Replies:** 8\ **Last updated:** [24 July 2026 20:31 UTC](https://forum.mssociety.org.uk/t/im-sinking/78862 "2026-07-24T20:31:27Z")
Hi im really struggling caring for my husband i feel awful for saying this, more my mental health :pensive\_face: his mood swings are off the scale i know hes in pain and can’t do the things he used to, i don’t know how t… --- ## [How to cope with my husbands moos swings](https://forum.mssociety.org.uk/t/how-to-cope-with-my-husbands-moos-swings/6279)
**Author:** [@Purple\_pixie](https://forum.mssociety.org.uk/u/Purple_pixie)\ **Replies:** 25\ **Last updated:** [24 July 2026 20:31 UTC](https://forum.mssociety.org.uk/t/how-to-cope-with-my-husbands-moos-swings/6279 "2026-07-24T20:31:05Z")
Hi This is my first time using a forum so please bear with me if I inadvertently do something wrong. 15 years ago my husband experienced some symptoms of MS - to cut a long story short he was told he had a virus in his c… --- ## [MS Nurse - West Lothian area/Edinburgh & Lothians](https://forum.mssociety.org.uk/t/ms-nurse-west-lothian-area-edinburgh-lothians/81517)
**Author:** [@LG17](https://forum.mssociety.org.uk/u/LG17)\ **Replies:** 1\ **Last updated:** [24 July 2026 09:56 UTC](https://forum.mssociety.org.uk/t/ms-nurse-west-lothian-area-edinburgh-lothians/81517 "2026-07-24T09:56:00Z")
Hello, could someone recommend an MS nurse who covers West Lothian or Edinburgh & Lothians? My Mum gets to see her MS Consultant (once a year), so I am hoping to get the name of someone/ a nurse who may be able to offer… --- ## [MS dementia and aggression](https://forum.mssociety.org.uk/t/ms-dementia-and-aggression/81452)
**Author:** [@TryingSoHard](https://forum.mssociety.org.uk/u/TryingSoHard)\ **Replies:** 5\ **Last updated:** [9 July 2026 21:38 UTC](https://forum.mssociety.org.uk/t/ms-dementia-and-aggression/81452 "2026-07-09T21:38:31Z")
I wonder if anyone has ideas how to cope with what is clear to me now is MS dementia and aggression. My wife became secondary progressive maybe 2 years ago, and has gone downhill rapidly. We are in our early fifties. Sh… --- ## [Care package](https://forum.mssociety.org.uk/t/care-package/74476)
**Author:** [@lubelle](https://forum.mssociety.org.uk/u/lubelle)\ **Replies:** 2\ **Last updated:** [6 July 2026 14:46 UTC](https://forum.mssociety.org.uk/t/care-package/74476 "2026-07-06T14:46:01Z")
Hi all. I’m new to the forums so please bare with me. I have a fair bit of exposure in a caring capacity to MS as I have both family and friends with different kinds, so I know it can vary. My query today is about start… --- ## [Rural no help](https://forum.mssociety.org.uk/t/rural-no-help/81407)
**Author:** [@wilsonshirley40](https://forum.mssociety.org.uk/u/wilsonshirley40)\ **Replies:** 2\ **Last updated:** [5 July 2026 22:37 UTC](https://forum.mssociety.org.uk/t/rural-no-help/81407 "2026-07-05T22:37:46Z")
Hi, I’m new here hello to everyone. My wife has secondary progressive MS. Over the last year I’m finding her character has changed so much. Crying at the smallest thing , shouting the next. I understand it’s frustratio… --- ## [My hubby is newly diagnosed](https://forum.mssociety.org.uk/t/my-hubby-is-newly-diagnosed/81421)
**Author:** [@katie\_anderton](https://forum.mssociety.org.uk/u/katie_anderton)\ **Replies:** 2\ **Last updated:** [3 July 2026 13:51 UTC](https://forum.mssociety.org.uk/t/my-hubby-is-newly-diagnosed/81421 "2026-07-03T13:51:46Z")
Hi. My husband was taken into hospital on Sunday with a suspected stroke, ct was clear but MRI showed demylation so he’s being treated for and told its ms. Since Sunday his weakness turned to a total inability to use his… --- ## [Brain fog getting worse](https://forum.mssociety.org.uk/t/brain-fog-getting-worse/81357)
**Author:** [@slambwelsh](https://forum.mssociety.org.uk/u/slambwelsh)\ **Replies:** 1\ **Last updated:** [27 June 2026 19:19 UTC](https://forum.mssociety.org.uk/t/brain-fog-getting-worse/81357 "2026-06-27T19:19:58Z")
Hello, I’m new to this. I care for someone who’s both quadriplegic and diagnosed with MS. Without invading their privacy by going too much into it, I’m really worried about their brain fog. I need something easily access… --- ## [If a carer can't cope please leave .](https://forum.mssociety.org.uk/t/if-a-carer-cant-cope-please-leave/81308)
**Author:** [@viv.ward61](https://forum.mssociety.org.uk/u/viv.ward61)\ **Replies:** 0\ **Last updated:** [9 June 2026 21:15 UTC](https://forum.mssociety.org.uk/t/if-a-carer-cant-cope-please-leave/81308 "2026-06-09T21:15:37Z")
I have ppms and yes I can completely get all the frustration exhaustion and disappointment in future plans gone because of this disease.But you as the carer walk away.If you are not up to the job go .We who live with ppm… --- ## [Advice - Periods of Deep Sleep](https://forum.mssociety.org.uk/t/advice-periods-of-deep-sleep/81304)
**Author:** [@steph95](https://forum.mssociety.org.uk/u/steph95)\ **Replies:** 2\ **Last updated:** [8 June 2026 21:27 UTC](https://forum.mssociety.org.uk/t/advice-periods-of-deep-sleep/81304 "2026-06-08T21:27:06Z")
Hi, I’m 30 and care for my Mum who has had MS for 26 years, so it is advanced and as i’m sure a lot of you know comes with a lot of issues! Since October last year she has been experiencing ‘periods of unresponsiveness… --- ## [New here + care support at home](https://forum.mssociety.org.uk/t/new-here-care-support-at-home/81282)
**Author:** [@jessicajefferyyy93](https://forum.mssociety.org.uk/u/jessicajefferyyy93)\ **Replies:** 1\ **Last updated:** [2 June 2026 19:58 UTC](https://forum.mssociety.org.uk/t/new-here-care-support-at-home/81282 "2026-06-02T19:58:33Z")
Hello, Im new to this forum, I’m seeking some advice and support and thought id try this out. My parent has advanced primary progress MS. Are there any companies or organisations who offer buttons that alert a care pro… --- ## [New to caring for father with MS - feel very alone](https://forum.mssociety.org.uk/t/new-to-caring-for-father-with-ms-feel-very-alone/81273)
**Author:** [@Catlife](https://forum.mssociety.org.uk/u/Catlife)\ **Replies:** 2\ **Last updated:** [2 June 2026 17:40 UTC](https://forum.mssociety.org.uk/t/new-to-caring-for-father-with-ms-feel-very-alone/81273 "2026-06-02T17:40:06Z")
Female, 35. I had a great relationship with my dad throughout my life but he was somewhat absent. He disappeared about 6 years ago until recently, when I was contacted to say he was very unwell. He had been in hospital f… --- ## [Caring for parent with MS - fall ](https://forum.mssociety.org.uk/t/caring-for-parent-with-ms-fall/81281)
**Author:** [@jessicajefferyyy93](https://forum.mssociety.org.uk/u/jessicajefferyyy93)\ **Replies:** 0\ **Last updated:** [2 June 2026 17:38 UTC](https://forum.mssociety.org.uk/t/caring-for-parent-with-ms-fall/81281 "2026-06-02T17:38:19Z")
Hello, I’m new to this forum. Im seeking some advice and support and thought id give this a try. My Dad has PPMS, he’s had it for quite a few years. I’m seeking out some advice on at home callout alarms, and organisati… --- ## [Tips for helping my dad remotely](https://forum.mssociety.org.uk/t/tips-for-helping-my-dad-remotely/81044)
**Author:** [@cdlynch2001](https://forum.mssociety.org.uk/u/cdlynch2001)\ **Replies:** 4\ **Last updated:** [1 June 2026 17:49 UTC](https://forum.mssociety.org.uk/t/tips-for-helping-my-dad-remotely/81044 "2026-06-01T17:49:13Z")
Hiya, first post here. I’ve had a couple of tricky situations and I wanted to know if anyone had any tips. My dad has had ms for over 30 years and his health has deteriorated in the last few years. In the last month he w… --- ## [Alone at end stages](https://forum.mssociety.org.uk/t/alone-at-end-stages/81022)
**Author:** [@markbrightburn](https://forum.mssociety.org.uk/u/markbrightburn)\ **Replies:** 3\ **Last updated:** [16 April 2026 19:37 UTC](https://forum.mssociety.org.uk/t/alone-at-end-stages/81022 "2026-04-16T19:37:56Z")
Hi, I supported my wife Portia 1998-2024 through the stages of MS but she sadly died Nov 2024 due to Aspiration Pneumonia. I felt quite alone in those later years as the charities tend to avoid end stage MS. I see a ne… --- ## [Cannot cope with caring for my husband](https://forum.mssociety.org.uk/t/cannot-cope-with-caring-for-my-husband/81043)
**Author:** [@Carin](https://forum.mssociety.org.uk/u/Carin)\ **Replies:** 7\ **Last updated:** [14 April 2026 14:16 UTC](https://forum.mssociety.org.uk/t/cannot-cope-with-caring-for-my-husband/81043 "2026-04-14T14:16:52Z")
My husband is 64 years old and over the last few years he has got worse and is now in a wheelchair full-time. I have always managed to cope but now I feel I cannot any more. My energy has gone downhill (66 years old) … --- ## [Respite scarcity](https://forum.mssociety.org.uk/t/respite-scarcity/80983)
**Author:** [@Yanni](https://forum.mssociety.org.uk/u/Yanni)\ **Replies:** 1\ **Last updated:** [23 March 2026 18:56 UTC](https://forum.mssociety.org.uk/t/respite-scarcity/80983 "2026-03-23T18:56:59Z")
Hello. My partner has tremendously advanced secondary progressive MS and we struggle to find places that will accommodate her for a week’s respite now and then. The two local-ish places that would don’t (one just termina… --- ## [Sleeve for Sore Arm](https://forum.mssociety.org.uk/t/sleeve-for-sore-arm/80981)
**Author:** [@cmq](https://forum.mssociety.org.uk/u/cmq)\ **Replies:** 0\ **Last updated:** [16 March 2026 17:10 UTC](https://forum.mssociety.org.uk/t/sleeve-for-sore-arm/80981 "2026-03-16T17:10:45Z")
Hi, my wife has MS and has terrible pains in her arm, particularly during the night. I was going to buy her an elasticated sleeve for her whole arm. Would this be useful or a waste of money please ? Any other ideas would… --- ## [Next steps and funding for residential care](https://forum.mssociety.org.uk/t/next-steps-and-funding-for-residential-care/80969)
**Author:** [@tessasmith1987](https://forum.mssociety.org.uk/u/tessasmith1987)\ **Replies:** 1\ **Last updated:** [14 March 2026 16:43 UTC](https://forum.mssociety.org.uk/t/next-steps-and-funding-for-residential-care/80969 "2026-03-14T16:43:25Z")
Hi everyone, I’m hoping for some guidance because we’re feeling quite lost about what to do next. My mother‑in‑law has MS, and her mobility and eyesight have deteriorated to the point where she can no longer safely live… --- ## [Shoes or boots suitable for AFO device](https://forum.mssociety.org.uk/t/shoes-or-boots-suitable-for-afo-device/80921)
**Author:** [@LG17](https://forum.mssociety.org.uk/u/LG17)\ **Replies:** 0\ **Last updated:** [1 March 2026 09:50 UTC](https://forum.mssociety.org.uk/t/shoes-or-boots-suitable-for-afo-device/80921 "2026-03-01T09:50:48Z")
Hi, could anyone recommend shoes that are suitable for an AFO device as my Mum has been told the heels/soles have to be solid and deep enough for the bolt to go through. Trainer soles are not suitable and brogues are not… --- ## [Vaccinations and Family](https://forum.mssociety.org.uk/t/vaccinations-and-family/80879)
**Author:** [@ms.prune288](https://forum.mssociety.org.uk/u/ms.prune288)\ **Replies:** 2\ **Last updated:** [22 February 2026 20:07 UTC](https://forum.mssociety.org.uk/t/vaccinations-and-family/80879 "2026-02-22T20:07:53Z")
I have a friend and ex-colleague who’s wife has MS had her diagnosis for some time. Her disease is getting progressively worse, and she is getting more frail over the years we’ve known with each other. I am retired Rad… --- ## [Best Mobility Aids for MS: Need Recommendations](https://forum.mssociety.org.uk/t/best-mobility-aids-for-ms-need-recommendations/80850)
**Author:** [@rowan1](https://forum.mssociety.org.uk/u/rowan1)\ **Replies:** 4\ **Last updated:** [15 February 2026 19:47 UTC](https://forum.mssociety.org.uk/t/best-mobility-aids-for-ms-need-recommendations/80850 "2026-02-15T19:47:20Z")
Hi everyone, I have been dealing with MS for a few years now, and mobility has become more difficult, especially on longer walks and getting in and out of the car. There is so much information that it gets confusing a… --- ## [Older parents caring for our daughter](https://forum.mssociety.org.uk/t/older-parents-caring-for-our-daughter/80685)
**Author:** [@Daws](https://forum.mssociety.org.uk/u/Daws)\ **Replies:** 0\ **Last updated:** [5 January 2026 22:34 UTC](https://forum.mssociety.org.uk/t/older-parents-caring-for-our-daughter/80685 "2026-01-05T22:34:11Z")
I would be keen to know what support might be available for parents of adult children with complex needs. Sometimes we can feel so much on our own. As friends age they have problems of their own and it is difficult to fi… --- ## [Constantly angry husband](https://forum.mssociety.org.uk/t/constantly-angry-husband/33268)
**Author:** [@clairelay](https://forum.mssociety.org.uk/u/clairelay)\ **Replies:** 9\ **Last updated:** [24 November 2025 18:44 UTC](https://forum.mssociety.org.uk/t/constantly-angry-husband/33268 "2025-11-24T18:44:16Z")
Hi, I’m new to the forum and I need your help. My husband has MS, diagnosed 15 years ago with no progression. He is injecting every other day, seeing his neurologist once a year and doing twice a year blood tests. Other… [Next page](https://forum.mssociety.org.uk/c/caring-for-someone-with-ms/7.md?page=1)